Well i’ll just keep you up to speed with my situation… for a couple of years on and off Ive noticed from time to time that things were not quite right. Last september I had a really bad migraine with auras at work (1st id ever had) and ever since then ive had headaches and a general unbalanced feeling- like feeling drunk but with out the fun! or walking on a ship on hectic waters! not fun…anyway between september and christmas the balance got very bad- couldnt walk a matter of metres without needing someone to hold onto to walk.
Initially got diagnosed by two GP’s with labyrinthitis…none of the medications worked- Went to a ENT specialist, had mri scans, ear function, diabetes, blood pressure the lot- all absolutely normal. Got finally diagnosed with MAV (which makes sense with the link with the migraines)- got given Pizotifen (1mg) - every since ive seen a MARKED improvement could go back to work (had to take a month of) and basically get on with my life (about 95% normal) apart from one annoying thing…a few days before my period i get the unbalanced feeling and through out the period…
I have only been on pizotifen since the start of january so don’t know if they havent taken affect or if its truely down to the hormones? Can anything be done to help during this time? I dont really want to be feeling like this every month. I hear the pill is an absolute no no with MAV…surely something can help?
Any advise/tips very welcome