Not yet. But I have been referred to the hospital so I will discuss it with them. As of yet the slanted vision is my only symptom.
Iām sorry youāve had to wait 6 months. Itās a disturbing symptom and the sooner you can get that checked the better for your sanity!
Note, my āswinging visionā resolved on 10mg of Amitriptyline.
I noticed it while working out at the gym and inclining the treadmill. I assumed that the treadmill slanted to one side while raising but now notice the slant everywhere. As you said, hopefully there is at least a confirmation by the hospital.
1 Like
These things are notoriously difficult to pin down completely and different doctors will put different labels on it. However, the treatment is not bad and will almost definitely improve things. If this is your only symptom then hopefully you will be able to all but eliminate it.
To the recent fellas, had the same thing for a while still kind of do. Two things helped me deal with it. Nortriptyline and I got special glasses named Neurolens because I also have BVD. Medication is different for everyone so start the trials see how you are. Sometimes the slanting with me was made worse when I was hyper focusing on it and making my anxiety worse. So Iām currently on Lexapro for the anxiety and Nortriptyline for the slanting and lack of balance. Itāll take sometime but eventually it settles and/or your body habituates to it. I also cut out nicotine and caffeine for a while during my adjustment which helped. Best of luck, and to anyone freaking out about the slant, youāll be okay. It takes time, but it does get better.
I get this. Itās particularly unpleasant when one is working with spreadsheets, makes all the cells look like parallelograms.
My research suggested that itās due to Utricular Dysfunction.
Hi,
I was looking up vision slanting down to the left and came across this, tilting vision as explained would have been easier.
Iāve had vertigo the past two days which has eased however my vision is tilting down to the left, started ten minutes ago. I have seizures which have increased with the vertigo, my vision has also been dreadful the past few weeks and have bad double vision, I wear glasses with a prism in due to the muscle in my left eye pulling outward which my optometrist tells me he sees in his epileptic patients.
I was wondering if anyone else whose had this tilt in their vision also has seizures? I have to admit it has scared me a little.
Many thanks in advance 
Hi everyone, Iām very glad to have found this forum. For the past two months, Iāve been experiencing tilted vision towards the left side. This is the only symptom I have. Iāve undergone two MRI scans of the brain and several vestibular tests, but all the results were normal. Has anyone found a definitive solution to this problem ?
1 Like
My left eye wants to pull to the left ā always has but as VM symptoms have intensified I can no longer control it. My horizontal vision is also wacky (one eye looks higher than the other) and this has gotten worse over time with each VM flare-up. Strong prisms in my glasses help quite a bit. Before my neuroptometrist prescribed the prisms I struggled with double vision ā now I can mostly avoid it except when Iām very tired. Itās incredibly exhausting and (I suspect) aggravates my VM symptoms (headache, vertigo, dizziness, nausea, etc). Certainly not a cure, but part of a coordinated treatment approach, which includes medication. My eye doc changed my lense prescription two or three times before settling on one that works best for me. You might want to schedule another appointment with your provider and see if there is something more that can be done. Best wishes.
Hi there, glad i found out about other people experiencing the same shit as i do. My vision has been tilted to the left for two months now, it came with chronic fatigue, muscle weakness, painā¦and a few months before all this i developped VSS (visual snow syndrome)ā¦i canāt seem to sit or stand correctly, it is a living hell, i am seriously loosing hope. I have to wait till may for the next medical appointmentsā¦anyway, i hope things got better for you, at least i know i am not alone
Hey there, I know what youāve been going through with your vision; Iāve been having the same symptom, and it really is a living nightmare. In my case, the only test that came back abnormal was the Ocular Vestibular Evoked Myogenic Potential (VEMP), which shows dysfunction of the vestibular system on the left side. Unfortunately, the doctors havenāt been able to help me yet and seem kind of lost. One of them said I might be experiencing Room Tilt Illusion, but he doesnāt know how to treat it. Iām currently looking for an otoneurologist and a neuro-ophthalmologist. I hope we all get better, and let me know if I can help in any way.
Recently everything has looked downhill literally. If Iām in the car (as a passenger since I donāt drive) I canāt tell if the road is flat it all looks like Iām just driving downward. If Iām in a building with open space it looks sloped in whatever direction Iām looking. If Im walking down a long narrow hallway it feels like sometimes I could just jump up and fall down to the other end of the hallway if I really tried. Nothing looks level period anymore. Even when I try to watch movies or tv shows I have this same sensation. Sitting and watching something level with my eyes slightly helps but I canāt tilt my head down and watch something on my phone without freaking out.
Iāve been diagnosed with MAV and BVD (Binocular Visions Dysfunction). I am taking Nortriptyline for the MAV 25mg just recently upticked to 50mg about a week ago. I have Prism Neurolens glasses for the BVD.
Nothing seems to help and Iām starting to lose hope. I adjusted to this issue before and I donāt think I can do it again I feel like I keep sacrificing and not getting anything back. What point do I stop habituating and start getting better. I donāt know what to look into next. Videogames used to be what would distract me and keep me content and I canāt even touch those anymore.
I rambled a little bit I guess what Iām asking is what should I do next or has anyone else dealt with this?
-started seeing a psychiatrist for suicidal thoughts and to hopefully start CBT. prescribed me Clonazepam and increased escitalopram to 20mg. Havenāt touched Clonazepam yet a bit scared to.
-thinking about talking to an opthalmologist.
-thinking about doing PT to strengthen my ears sense of balance since a lot of my balance is based on vision and when things look tilted I therefore fell the tilt/pull.
-thought about new neuro but Iām seeing M Cherchi who is the best since T Hain recently retired and I actually like Cherchi he doesnāt sugar coat.
How awful! No wonder youāre at the end of your rope!
Iāve had vision issues too, although not as severe as yours. I see a neuro-optometrist who has helped me quite a bit. His practice is primarily people with VM, recovering from traumatic brain injuries, etc. He gave me special prescription lenses and Iāve have had quite a bit of vision therapy, which isnāt easy but has helped. You might also seek out a neuro-opthamologist. Is there a teaching hospital near you where you can find vision sub-specialists?
I wouldnāt give up your relationship with your neurologist, just look for a sub-specialist to help with your vision issues. In addition to the neuro-opthamologist, Iāve consulted with an ENT and and a neurotologist, all with the encouragement of my primary neurologist. Keep looking for answers.
BTW, I take clonazepam, but only as a rescue drug. It really seems to interrupt a VM attack when nothing else does, and calms my brain down. Itās not something Iād want to take regularly but it sure helps me when I need it.
Hang on and keep looking for answers, my friend. Let us know how youāre doing.
1 Like
Hey, I recently saw a neuro-otologist. I have similar symptoms as you with regard to tilting and things appearing downhill. Heās diagnosed me with PPPD. Iāve seen two neuro-ophthalmologist and neither thought it was ophthalmologic related. He recommended I take migrelief supplement (magnesium oxide) and take 800mg of it or 2 pills during the day and 2 at night. Iām on my 3rd week and Iām noticing changes and feeling more balanced. If after 2 months, I havenāt recovered then weāll try amitriptyline. He seemed pretty confident that would fix it.
Also, you might want to check your vitamin d levels. I was woefully under and my neurologist (different than the neuro-otologist) impressed on me the importance of bringing this number a lot higher. Start taking a vitamin d supplement.
1 Like