Hi all, I’ve been lurking on this website for some time now. I am so glad I found this community of people. Honestly, I’ve not been coping well.
tl;dr - I woke up one morning in August 2020 and realized my entire visual field appeared tilted/slanted and it hasn’t changed since. Has anyone experienced something similar?
My symptoms started in July 2020 and I’ll spare the all the details. In hindsight and looking on this forum, I was having MAV. Midway through August I started to develop head pressure that was between my eyes and was left side dominant along with stuffed sinuses. Occasionally I would get this feeling like something was crawling out of my left ear. Nothing actually came out. Then on the morning on August 23rd I woke with the feeling of something crawling out of my ear. When I woke up I realized that my entire field of view was tilted/slanted to the left…
When I am sitting at desk it looks like if I were to put a ball on the desk it would slowly roll to the left. My monitor looks like its tilted/slanted/crooked. Everywhere I look, the entire world looks like it’s slightly tilted. When I walk I feel like I am walking on a slightly slanted surface. The degree of tilt is persistent and hasn’t changed since I first woke up with it. Some days I have less head pressure and light sensitivity when looking at my monitor. However, the tilt degree is persistent.
I’ve had a CT scan, two MRI’s, VNG testing, rotary chair testing, cVEMP testing, and hearing testing done. Thankfully, all of these came back normal. My neuro-otologist has diagnosed me with VM/MAV and I currently taking 10 mg of nortriptyline and following the migraine diet very strictly. I’ve been taking the nori for the past 1.5 months and it, along with the diet, seems to be helping with the head pressure. However, my perception that the world is tilted has not changed one bit. I am scared.
Has anyone experienced something similar?