Hi there, I read your post and reminded me of the intense nausea I experienced through oct and nov last year. Yes, it was as soon as I woke up, mainly in the morning. But I did vomit! Every morning! Then I would feel nauseated the entire day and only ate very little. Lost 6 kg over 4 weeks or more.
I was on propranolol at the time and suffering through a very bad VM episode. My first one. I was off work and very dizzy. Moving my head my nearly impossible. But the nausea!!
As soo as I started pizotifen, literally the next day, the vomiting stopped and I slept the full night in months. I still canāt work out whether the VM or the med was causing it.
Iām going with the migraine as I was vomiting before I started the propranolol. So my opinion, itās the migraine not under control yet.
It is terrible feeling sick! I also get worse during my period so I feel for you there too. I hope you find the right med for you.
Came across your post. I thought I was reading my own. Thatās mainly the symptom I have: NAUSEA and it starts from just getting up and taking a few steps, turning from kitchen sink to stove, walkingā¦Motion Sensitivity.
I hate it and I wish friends and family would understand how awful it is. My symptoms started as soon as I had my last period (menopause) and my new Neurologist seemed to agree that hormones have something to do with it too. I am the only parent to my son and going to work and be able to function as a teacher has been horrid. Whatās harder is that I have no one else to fall back on for income so I have to push through the symptoms. Right now only working in a part time position but being that it is in teaching/education, āpart timeā is actually full time. The best job would be be sitting in one place and not moving and staying in bed. It is awful. I live this and I completely understand this.
If you are interested in reading my posts, my user name is Suffering. I am struggling, suffering, and just when I get a little hope and think I am getting better, I relapse dashing my hopes and putting me back in the discouraged department. All I can say to you is please hang in there. I feel I am the worse case scenario but being part of this group and seeing that my condition is also many other peopleās, it reframes things.
You are blessed to have two kids and a supportive husband. It took me years and years to get my one son. The hardest thing I did in my life was to get to him after many years of surgeries and visits to RE doctors and IVF treatments. I was an older mom and I pray everyday to get the strength and health to raise him to adulthood. I am wishing you health and the vibes are telling me itās coming your way soon.
I read through your posts. Sorry to hear youāve been suffering for so long. I think once you get a diagnosis, itās a little easier to start treating it. I guess Iām fortunate to have gotten one in about 4 months. Iām finally seeing a doctor who supposedly can treat me, after 7 months.
āThankfullyā my nausea was a later symptom and Iāve only had it since December. Itās horrible, I know. Even with the Zofran I was prescribed I can barely eat.
It sounds like youāre headed in the right direction. Hopefully the amtriptyline and injections continue to give you more better days. It also sounds like you finally found a doctor who knows what heās doing and agrees that hormones can be a trigger. From what Iāve heard, most OBGYNs dismiss that theory.
I am so incredibly lucky to have my husband. He is fantastic, and has been so supportive through all of this. He read the book āVictory Over Vestibular Migraineā by Dr. Beh with me to help gain a better understanding. He has taken on more since my symptoms became more debilitating. He is my biggest cheerleader and always reminds me that itās going to be ok and I WILL have good days again.
Stay strong for your son. He needs you. I couldnāt imagine not growing up with my mom, even if she wasnāt her best self. I always remind myself of that for my boys. They keep me going.
Thank you so much. The anti-nausea meds they prescribed like Zofran and Promethazine, made me loopy and feel worst. So I donāt take them. Now since two weeks, under the new neuroās guidance, meds are changing, added, taperedā¦so a mix of symptoms. I pray for everyone here that they can get their health back 100%.
Thanks again for responding.
Yes I had constant nausea when MAV was uncontrolled. When I got out of bed in the morning it would start immediately and if it was severe so were my MAV symptoms that day
Iām so sorry to hear of your suffering. I can relate in part that I worked full time all through MAV too, because I had to and it was the hardest thing Iāve ever done. I sympathise, have you been able to try any medications?
Thank you for responding! Itās a relief to hear that others have experienced the same. It is actually my worst MAV symptom. Iāve really been second guessing it because I have it even if Iām not experiencing much/any dizziness. But my neurologist said itās definitely possible. Plus the nausea all started when the MAV started so I guess itās no coincidence.
Apparently my brain is so hyper and is getting a lot of motion conflicting signals. I hope youāve found something that helps you and made improvements!
Yes, was prescribed Topirmate from one doctor which made my condition worse. Went back to him and he didnāt know what to do with me. He could name the condition but said he had no expertise in it. (I was grateful that after a year of living with pure hel- someone finally solved the mystery of my mystery symptoms). After Topiramate, he gave me Lamictal. Took that for nearly 2 months without relief. Finally I took the matter in my own hands, read through the posts here and research and asked my Primary Care doctor for an Amitriptyline prescription. By then the time for the neuro appointment came and he agreed to put me on Amitriptyline and the monthly Aimovig injection as well as tapered me off the Lamictal. I try not to get up too fast or tackle different things like before. It seems that I am noticing a difference at 10mg but neuro upped it to 20mg. Iām doing it very slowly because it makes my body sluggish. Right now I take the 1 pill and about another half (however the pill cutter cuts it).
Itās been three weeks of continuous change.
Hi! Itās crossed my mind a handful of times that I need to come on here and post an update. I tried a few different migraine medications with no difference one way or the other. I was not convinced that vesitbular migraine was my correct diagnosis. In talking to a friend I was given the final push to see a concussion specialist. All of my problems started when I fainted. It was unwitnessed. I went to the Emergency Room and was told I did not have a concussion which led me to pursue other diagnoses for my symptons which sent my down a rabbit hole that led me to vestibular migraine. But I always came back to the fact that my problems all started after I fainted. I saw the concussion specialist, and was diagnosed with post-concussion syndrome. I started a concussion program which involved vestibular therapy (had already tried that but it didnāt help me because it wasnāt enough) and exertion therapy. The treatment for a concussion is no longer rest in a dark room which sadly a lot of doctors donāt know. Part of the program was facing my triggers for short periods and increasing that period over time, example: driving. It was hard at first but with that and the therapy, I made great improvements. I weaned off all of my medications except for a SSRI for anxiety. I am 100% back to where I was before all of this.
It was the best thing that ever happened to me and Iām so glad I didnāt give up.
