Need help finding neurologist

Physicians, Specialists, Clinics & Visits 👨‍⚕️👩‍⚕️
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Hello everyone,
I’m fairly new here and am so very thankful you guys are here and I found you. I had a very exasperating day - here’s a little background: I woke up one morning in January '09 feeling like I was coming down with the flu (I remember it so precisely, because a snow storm was heading this way, and I was out trying to find a sled!), anyway, I awoke the next day with severe vertigo which lasted continuously for about 1 1/2 weeks. I went to family dr. and after being on antiobiotics for a week to no avail, sent me to an ENT. This went away about as suddenly as it came on me - I also was having severe heachaches and nausea. So, this has continued happening about once every couple of months. All my MRI’s and CT’s came back normal - my ENT referred me to a specialist in the field because one neurologist believed I had Meniere’s - and, after looking at the Meniere’s site, even I realized it wasn’t that. I saw this specialist about 2 weeks ago and he was 99.9% sure it was MAV - but, he wanted me to have a balance test and VNG (?), which I completed today - showing nothing but some vestibular problems with balance. I saw this dr. after all these tests and he tells me I need to see a neurologist and couldn’t even refer me to one. I have had it - I thought this would finally be it and now, I feel like I’m starting all over again. Now, who knows how long it will take to get an appointment with a good neurologist. Sorry, about all this ranting, it’s just sooooo frustrating - as, I’m sure many of you can understand.

I was wondering if anyone knows of a good neurologist in the North Carolina area - I’d be willing to travel anywhere in the state, if I could find a great dr. who has experience with MAV. And, now my symptoms have changed, and for the past month I’ve been swimmy headed 24/7 with severe headaches and nausea. I’m doing my best to hold it together, but I’m so upset I’m not even sure what to do next. I just know I’ve got to find a great dr. that understands this diagnosis and can begin to help me.

Thanks for listening and if anyone has any referrals or information on what my next step should be, I would greatly appreciate it.

Thanks,
Renee’ in North Carolina

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Renee, Sounds like the doctor left you kind of stranded. I’m not from your area so I don’t know any doctors down there, but at one point when I was looking for a neurotologist (there are virtually none in my area) I sent an email to Dr. Hain and asked him if he knew of any near me. He responded within a day and gave me the name of someone. (Turns out the doctor he gave me was a good 125+ miles away so I never went to see him, but I probably wasn’t very specific as to my exact area.) I no longer have Dr. Hain’s email address but I’m sure others here do, in fact I think I found it by doing a search of his name. Maybe you could drop him an email and ask if he knows of anyone in your area.

book

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I hope this helps. The vestibular disorders website has a listing of specialists.

vestibular.org/find-medical- … sional.php

Select “North Carolina” in the drop down menu and a list of specialists turns up, including neurologists and neurotologists in the area.