I’m new at this forum – I’ve been reading a lot, but never ever posted before. I am so happy that this forum exists, thank you everyone!
I’m a 37 year old woman from Copenhagen, Denmark. I’ve been ill since april 2010 and in August I was finally diagnosed with MAV. I am dizzy 24/7, experience frequent episodes of rotational vertigo, have neck- and headaches, tinnitus and feel exhausted almost all the time. I am married, have 3 small children, work as a researcher at the university – all in all I led a pretty good life until this kicked in. I am not able to work and I do have a hard time taking care of my children. I used to be so happy and very outgoing, at the moment I feel sad, I cry a lot, am pretty house bound and I’m having a hard time believing that this will ever get any better. 2 weeks ago I started nortriptyline 10 mg, but it makes me very tired (and that triggers my dizziness) but worstly: I’ve had some severe headaches so I might quit it and go on to another med.
My question to you guys regards the VEMP-test. As I believe a lot of you have done, I do from time to time doubt that I suffer from MAV since I’ve no history of migraine – however, I know that this is not a defining criteria. I’ve had 3 VEMP tests done, and every time on my left ear the result is a low threshold and a strong and increased reaction (a big wave). In the literature I read that such a response is typical for a dehiscence but since I have no other symptoms of dehiscence I am told that it is migraine, not a dehiscence. Also, the 3 VEMP tests do not show the exact same pattern every time, the amplitude is always increased and the threshold is always low – but not to the same degree (I know that the VEMP is crude, but interestingly the time I felt best when tested the amplitude and threshold were not as abnormal as when I was tested and had a very rough time). I’m told that such a variation is typical for MAV, not dehiscence. Have any of you had abnormal VEMP results – have they been varying and have they also shown a big wave?
Thanks for reading, hope that someone will answer….