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New here too, just been reading messages and trying to pluck up the courage!

Hi I’m new here too, just been reading new messages and trying to pluck up the courage to write something, I have been diagnosed with vm too and yes it really sucks, 18months in and tried so many things, I started the heal your headache diet after Christmas and it’s helped massively, to start with I just sulked as there was so many yummy things I couldn’t eat or drink anymore but now I’m two months in and enjoying the healthy eating. Reducing stress in my life, good sleep hygiene and Working less has really helped too.
Its great to hear that I’m not alone.
Thanks caroline

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Welcome aboard Caroline, sorry you are suffering.

Read the Wiki and use the search facility. You will find people very friendly, so post away! Good luck with your recovery!

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Welcome to the board. Hope you get well soon.

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Hi all
I’m new here and I’m so glad I’ve found you all :two_hearts:
I started with vm/mav October 2018 and since being diagnosed in April 2019 I’ve been reducing stress, on the heal your headache diet and trying to sleep better. Unfortunately I’m still suffering, friends and family who don’t understand what I’m going through are mentioning, a curable app, tame the beast and is it all in my head ? Am I imagining this chronic pain? Any advice please
Many thanks
Caroline

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Not in your head. If you are still suffering can you go back and see the doc who diagnosed you and would you be willing to take a med? Diet and reducing stress often aren’t enough, your poor confused brain stem may need a rest and something to damp down all the conflicting information and signals.

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Oh Caroline… I wish VM was all a figment of our imaginations. I am so sorry for your lack of support! Please find a good doctor who is very well educated, (if your Dr is not) and ask your loved ones to go on dr visits with you. My husband was as supportive as I could have expected him to be… for a while. Then, he said the dreaded words “are you sure this isn’t all in your head”. Yes… my sweet, precious, soul mate said that! It was crushing, so I do understand how you feel. Going to my Dr appt with me was the moment he understood and I couldn’t have asked for better support since! If they could hear from a Dr about the disorder, they may change their view. Best wishes Caroline and I’m glad you’re here :sparkling_heart:

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Thank you both for those helpful replies, I was on amitriptyline for about four months on various doses but I came off them as I was getting very agitated and extremely emotional so I thought I would try the natural holistic approach, but now seven months on although it’s helped I’m still getting migraines. I think I need a new specialist, does anyone know any in the Leeds area?
Thank you again :pray:

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Hi Caroline. Dr Zermansky at Salford, Manchester. Ask your GP to refer you. Helen

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Caroline have you just abandoned your original account?

Please let us know which one you intend to use going forward and I can transfer your posts and delete your other account.

Try to stick to one account please :).

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I didn’t realise I had two accounts, not sure what’s happened :cry: perhaps I have one on my iPhone and one on iPad - I’ll try cancel one, sorry

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Agreed. Taking them along helps, but it wears off. Even my beloved needs a top off occasionally. The last time he implied I was wallowing I had him look right at me. I had an ocular migraine at the time and my pupils were very different sizes. I asked him if he thought I could fake that. Now whenever he’s doubting me I hear him tell himself that. I find that just baffling. It’s one more hard aspect of MAV that it’s an invisible disability.

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No worries, I’ll transfer to this account and delete your other account. This will force you to login with this account. EDIT: done

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Hi Caroline, I’m confused about your stories. Nevertheless, I hope everything is okay! God bless you.