Thanks for the input Kirsty, Helen, Lucy, Karen and Sharon. Much appreciated! My ‘experience’ is that everyone reacts differently to medication / everyones shared ‘basket of symptoms’ are caused by different things so i needed to hone in on people who see similarities to my story.
Helen, Celexa was on my list but further down. Its now in 2nd place and i’m hoping a member not posting often can be taken as a good sign…
Karen, Venlafaxine has been on my radar since reading posts on here and was going to be the drug i ask for next so i’m glad this has come up!
Sharon, I’ve asked for Verapamil before and was told by the doctor that it was a ‘powerful drug’ and given out mainly for heart issues. I was then put on Inderal and that caused me to become dizzy straight away. I was always in good shape so my heart beat sits around 45-55 so Beta-Blockers arent for me. However Cinnarizine was the first drug i responded to (CCB as you know) and this took my Tinnitus from an 11 out of 10 to a 6 or 7. This then spurred my research into blood flow and led me to go private and check out my heart etc and everything was fine (of course).
Lucy, my symptoms were crazy and it made me look like a hypochondriac and saw me in my local doctors office with 4 doctors refferring to me as a ‘mystery case’. After 2 years i almost wanted them to find something even if it was more sinister just to have a target.
October 2016 i had vaccines to go to Thailand (i’m not an anti-vaxxer…but the patients health ideally needs to be tip top when taken). They did like 8 inside of 12 days which i felt was too much for my system along with over training, poor diet at the time (rare for me) and lack of sleep for various reasons. After this holiday i had fatigue / legs felt like lead, i felt uninterested in life and i got occassional heart murmurs. December 2016 my heart began to race like i had adrenaline constantly running through my system and this was the last time i enjoyed sleeping! May 2017 im watching the Walking Dead with my gf eating take away chilling out and suddenly the tinnitus started. Thought / hoped it was the tv. Then a wave of extreme sickness started and i thought (wish now) i had food poisoning. Got up to go to the toilet to be sick and fell over and the room started spinning. I was throwing up all night and was dizzy for about 15 hours.
The story goes on a bit but in short these episodes happened more frequently until i was trapped in a constant cycly of vertigo with nystagmus for 1-3 days at a time, in a sleep coma for a day recovering, get half way through the next day and it would begin again. I was put on steroids summer 2018 to stop this which it did. I got my life back for 8 weeks.
To be continued lol…
Menieres 2016-2018 Vestibular Migraine 2018 - present
Tinnitus (Left Ear), Ear Fullness (Left Ear), Neck (Tight, achy, crunchy), Occipital Neuralgia (Left side), Head Pressure, Swollen eyes, Lightheadedness, Dizziness, Vertigo with Nystagmus, Joint pain (everywhere but mainly costochondritis), Chronic fatigue, Severe insomnia (awake 20 plus times a night), parasthesia (arms and back of head) Tremors, Depression (secondary due to situation - fine before), Cold hand and feet, brittle nails (I’d like to know if anyone else noticed this?), Atrial Flutter / Tachycardia, Heartburn feeling, Overall grogginess…
BetaHistine (Did Nothing), Stemetil (Did Nothing), Cinnarizine (Reduced headaches and lowered Tinnitus), Prednisolone - 8 days of 40mg (Felt like superman…with tinnitus), Amitriptyline (Racing heart but felt better / not beaten up in morning), Nortriptyline (Same as Ami), Inderal (Bought on all symptoms straight away - not for me!)