(new!) migraine with aura - the anxiety doesn't end

I had no idea such a support group existed and I have no hope for much but I just wanted to share my symptoms.
I’m 20, female from asia, my migraines started last year. It happens at an average of once or twice in a month after every two months. It’s happened around 10 times over the year. Not as serious as the other people here, but still a little scary for me. The intensity and symptoms vary but in general it starts with a visual disturbance that lasts for about 20-30 minutes, then a few minutes of numbness on my arm and face, and then the headache begins which lasts for the rest of the day. I also have disorientation and confusion.
And the latest development has been constant black spots in my vision for the past few months. They’re small spots (not floaters) that come and then I blink away every few minutes throughout the day.
I’m not on any medication, I’m someone who doesn’t even take painkillers for broken bones but my last migraine was last night and the headache kept me up for hours last night with no relief so I took a painkiller and now the throbbing at the back and left side of my head is still there even after 6+ hours of sleep.
I’m a full time college student and I’m so busy throughout the day that I have no idea for triggers (I had one cup of coffee yesterday so that might explain the horrible headache but I can’t pinpoint a particular trigger for the ones before).
I’m on no medications in particular. My vitamin D was 45 so I’m taking a pill a week for that. I also take a multivitamin.
I tried speaking to doctors - an eye specialist and a neurologist and both took one look at my age and the fact that I’m a female and outright told me I should “react less”.
The migraines would give me anxiety and my hands would shake for the following days too but last night I was just so tired and done that all I do is wait for it to pass. I’m stumped.

Things I should include:

  • I took a few blood tests for sugar and thyroid etc and everything came out normal
  • I also have phases of tinnitus and some nausea
  • I have random phases of mild headaches
  • Is it normal for a 19-20 year old to have this…?!
1 Like

Welcome to the forum @makayla_fiero. Sorry to hear you are suffering.

Please note this site is focussed on vestibular conditions, of which Vestibular Migraine is but one.


" About mvertigo.org vestibular disorders support forum

This is a support forum primarily for sufferers of Vestibular Migraine (VM), Migraine Associated Vertigo (MAV), Persistent Postural Perceptual Dizziness (PPPD) & Secondary Hydrops (SEH) - essentially anyone who is suffering chronic dizziness and/or imbalance potentially with migraines, though we warmly welcome those suffering from other inner ear and vestibular conditions."

Nonetheless, there is obviously a significant amount of material that might be useful for migraine sufferers generally, but there are probably better websites for that.

Makayla - There are many different types of migraine - those of us on this forum have been diagnosed with vestibular migraine, which is a less common condition and difficult to treat. Sounds like you need to find a medical provider who specializes in headaches. Your primary care physician should be able to help you with this. Don’t let them brush you off – bring someone with you to the appointment if necessary. Here are a couple of websites that might help you figure out your symptoms and next steps.

https://www.migraineagain.com (an advocacy group)

Hang in there!