New Neuro-otologist appointment - advice please

Howdy,

I’ve got an appointment with Dr Waterston in Melbourne in a couple of weeks - he’s the state’s resident MAV guru. I’ve been forewarned that although he really knows his stuff he has the interpersonal skills of a surgeon (ie none) so I want to go well prepared with a summary sheet of my history and current situation (my GP’s referral, laughably, completely misrepresents things and talks about headaches, but I don’t get headaches!), and with a list of questions. Also, as I’m doing a round trip of about 8 hours and ~600k for the appointment I want to get my money’s worth out of my 20 minutes :smiley:

Any tips, or advice of things to ask / take / do in my appointment based on your experience with your neuro / specialist would be gratefully received!

Thanks,
Gabrielle

HI Gabrielle,
I was under the impression that you were fairing well on your current meds?
My personal experience is don’t bring anything in off the internet…most won’t even look at it, or they just scan it and put in file…they don’t take time to read it…God forbid a patient might actually have something to teach these geniuses!

A timeline, list of questions, and responses to prior meds seems to be the best imo…
Good luck with it all! Hope you get some good answers!
Kelley

Hey Gabrielle,

The first thing you want to do is get him to give you a prescription pad so that you can write Valium scripts for me, Vic and yourself for the next 40 years. :lol:

Other than that, I would do exactly what Kelley mentions here which is to write down in a clear manner with headings and dot points, your history. Guys like Waterston will have his differential diagnosis brain in gear listening to you and perusing your history. He’ll be in the know about migraine and dizziness.

Scott

— Begin quote from “scott”

Hey Gabrielle,

The first thing you want to do is get him to give you a prescription pad so that you can write Valium scripts for me, Vic and yourself for the next 40 years. :lol:

— End quote

Like like like like like like like like like like like like! :lol:

HI Kelley - I am now -0 but when I made the appointment 4 months ago I was not…but I figure I might as well keep it now . Not planning to take anything from the 'net, but will throw in a good word for MVertigo if it seems appropriate

Scott / Vic - I don’t like my chances but will see if I can hypnotise him and snaffle the notepad while he’s not looking :lol:

Gabrielle,

I’d do what Todd did and sit down and methodically write a summary of your key symptoms, history (including diagnostic tests) and success or otherwise with various lifestyle mods/meds.

Depending on whether you have the inclination and/or time during the appointment I would actually mention this forum. I don’t know anything about Waterson but I believe some docs do actually refer their MAV patients here for it’s information and advice. It wouldn’t hurt him to check it out either.

I hear you on the GP’s poorly worded (wrong) referral. I found my GP notes had me listed as having ‘panic disorder’ all because one time a GP who I saw only once for a script refil decided that because I use Valium that’s what I must have (despite me fulfilling none of the diagnostic criteria). I raised it with my usual (excellent) GP who rolled her eyes and said “I’m deleting that right now”. I have no issue with Panic Disorder, I just don’t have it!

Good luck with the appointment!

Vic

— Begin quote from ____

I’d do what Todd did and sit down and methodically write a summary of your key symptoms, history (including diagnostic tests) and success or otherwise with various lifestyle mods/meds.

— End quote

I was thinking the exact same thing after reading Todd’s notes. Put together your own case report with the information you have using a similar framework to what Baloh has done (but maybe with dot points instead). If you can deliver this to Waterston in the same way they work every day of their lives, it will speed things up and you can quickly get to the meat of the issue. He’ll also be impressed with the notes and will get things off on the right foot.

I may produce a template later on when I get some time for everyone to use. There’s a couple of specialists working near me that I can bounce this off of.

Scott

Just spoke to the prof here and he said to make your own personal notes – dot points are good – and keep it (your history) in chronological order. Be prepared for Waterston to stop you and ask you to expand on a point or he may think something you mention is not important and you’ll just carry on.

They do like to hear what you’re saying off the top of your head too because you may have missed something in your own notes of course. It’s a combination of both that is good … the dot points will keep you on track and stop you from shooting off on a tangent. You don’t want to end up telling him about the great deal you got on bananas at Coles Sunday nigth after that horrible cyclone Yasi. :lol:

— Begin quote from “scott”

. You don’t want to end up telling him about the great deal you got on bananas at Coles Sunday nigth after that horrible cyclone Yasi. :lol:

— End quote

Wrong. That scenario is completely relevant in assisting diagnosis as: a) shopping at Coles is hard for people with MAV and b) changes in barometric pressure (eg cyclones) are also a well known trigger.
:wink: