I’m feeling a bit deflated but glad to have found this community, for the last few months I have found myself digging through your message boards trying to understand what might be going on with me.
In short, mid 2019 I had a violent vertigo attack - the world spinning around me without stopping. It was gone by morning and I was fine. A month later it happened again but I threw up for hours from the sensation/nausea. I started having violent attacks every 12-21 days that would last 2-4 days and then I would have a week or two of relief in the middle. At this point, my issues are chronic but milder than last winter. I haven’t had a full intense vertigo episode since February but I have issues with motion and balance daily. Sometimes my nystagmus kicks in along with intense nausea but not so often and my eyes get blurry a lot but only for an hour or two at a time. I’m a visual artist so this is troubling but I have been assured that my actual vision is ok and this is just a symptom of vestibular migraine.
The long version includes multiple ENTs, a neurologist, GP and hero of a vestibular physio (without whom, everyone would still be sending me home with the epley maneuver and gravol). Clear MRI, and audiology reports, other tests pending (delayed by covid) but the ENT and neuro think Vestibular Migraine is my issue or maybe PPPD (I can’t figure out what this is). I did the low tyramine, low histamine diet for 3 months and have been moved onto keto. Only week 2, so far all keto has done is remove the energy I used to have but I’m going to give it a few months before I throw in the towel. Energy was one area where I didn’t struggle - as soon as an episode subsided, I would be immediately energetic again. Which I gather is unusual - I had no vertigo hangover.
I guess I’m pretty lucky because for the most part I can live my life around my issues. 2019 was the best year of my life, I was training for my first full marathon (which I completed without having a vertigo episode), having some successes in my career and really happy. I am still able to run a bit and have a decent work-in-bed set up for the times that is necessary. I’m happy I joined this forum, I think it will be helpful to connect with others in this same rocky boat. I realized today that I have kept thinking that this would resolve some day as suddenly as it started and that it might be more realistic if I just accept that this might be my life forever. It breaks my heart reading posts from so many fellow migraneures (sp?) who have been struggling for decades.
Thanks for reading
(Edited to add dx details)