Apologies to all the supportive board regulars—I haven’t been reading or posting lately, but thought I’d come back with an update. In the last few months I have
Started seeing a TCM for acupuncture, herbs, etc. Some positive effects there.
Been diagnosed with persistent post-concussion syndrome. This was interesting because I had been told I did not have a concussion after I was hit by a car 18 months ago. Turns out I probably did all along (the concussion therapist pointed out that if you hit your head on the ground hard enough to send teeth flying and bust your face open, concussion is likely, hmm). So I’ve begun various concussion therapy exercises (balance, eye tracking, gaze stabilization, etc etc) and vision therapy (convergence and divergence, peripheral vision, etc etc. I think there has been some improvement here; it is nice to know the chronic migraine is not the only source of my head issues.
Just saw a pain management specialist. I didn’t know if he would have anything for me but to my surprise he’s lined me up for a variety of things: he tells me my brain is not processing signals properly following the trauma and that the physical pain as well as the neuro trouble are part of this (central sensitization phenomenon). So, next up are:
—increasing Aimovig to 140mg
—beginning Topamax, today probably. I’m naturally apprehensive about the side effects and would be glad to hear from anyone with experience. One reason I am curious/willing to try it is its reputed effect with addiction and compulsive disorders; since I have one that I really need to get under control, it’s worth a try
—some kind of lidocaine/ketamine infusion that is so strong that I can’t drive afterwards, not sure if I am going to go through with it.
For Topamax, I’m aware of the most common side effects and they don’t sound at all great but I do want to try something new since I’m in a rut.