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On the road to recovery?!

Hi guys,

I posted her around a year ago, explaining that I’d been suffering from the occasional vestibular migraine for around 10 years but had always been misdiagnosed. I suddenly started feeling symptoms (below) 24/7 in March of last year and after seeing multiple neurologists I found a potential diagnosis in VM.

When I posted here, I told one of my friends about it and fast forward to today and she sent me a message reminding me that I should update you all!

As of August last year I started feeling 50% better, come November and I was at 70%, January 80% and now in April I’m at 90% :slight_smile:

I’m back working full time and am even playing team sport again!

I know that this thing can be cyclical so I don’t want to get my hopes up too much BUT what I am experiencing right now is it least proof that you can feel (mostly) normal again!

Medication
Pristiq 150mg
Valium 10mg (once every 1-2 weeks)
Maxalt (3 times in the last 6 months)

Food

  • Try to limit all additives & preservatives but haven’t cut them out 100%
  • No wine, beer, champagne, cider or dark spirits
  • Lots of water

Vitamins
Since Co-vid I haven’t been taking my vitamins much so I’m not really sure how useful they are/were but here they are nonetheless
Magnesium glycinate 1000mg
B12 500mg
CoQ10 500mg

All Symptoms

  1. Blurred vision
  2. Heavy/strained eyes
  3. Disassociation
  4. Mild tunnel vision
  5. Nausea
  6. Intense dizziness
  7. Horrible shaking feeling in head (like leaning against a washing machine)
  8. Pain/discomfort behind my nose
  9. Tinnitus
  10. Anxiety

Current Symptoms

  1. Heavy/strained eyes (occasional)
  2. Horrible shaking feeling in head (like leaning against a washing machine) (mild & occasional)
  3. Pain/discomfort behind my nose (occasional)
  4. Tinnitus
  5. Anxiety (occasional)

P.s. I tried to upload this to success stories but it’s not coming up in the dropdown list for me :frowning:

7 Likes

Congrats Nicki! Thanks for sharing. We could all use some positive news! :heart:

3 Likes

Thanks for the update! Congratulations! I’ll move it for you (update: done).

2 Likes

Congratulations dear
So glad to hear a success story
Hope you will be symptoms free for ever

2 Likes

Obviously what I’ve written above is just a brief summary, i.e. I have tried lots of other meds, diets, been to lots of specialists etc., so feel free to ask me any specific questions.

What meds you are on ?
That really worked
I am on cymbalta 30 mg and feel 80% better

I take 150mg pristiq (it’s an SNRI like Cymbalta), the average dose for depression is 50mg, so I take a pretty high dose. I didn’t feel any difference in my VM symptoms until I got up to 100mg.

Some days I don’t feel great so I take 10mg of Valium (5mg in the morning, 5mg in the afternoon) which really helps but I don’t take it more than once a week because I know it can be addictive.

Guys, keep the discussion to the OP’s case in this kind of Category please. Post personal updates on your diary wherever possible.

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