Hi @Carmen6975, and thank you for sharing Mia’s story—what a journey you both have been on! I’m so sorry she’s going through this, but you’ve come to a place where people truly “get it.” And thank you @Karen_Kiki for chiming in with your experience—pickleball comeback stories are the kind of hope we all need!
You asked about the tilt table test and whether it’s helpful or difficult for people with PPPD or similar dizzy conditions. Here’s what I found from others on the forum:
- Many members have had a wide range of tests, including tilt table tests, especially when POTS or autonomic issues are suspected. Experiences are mixed: some find it helpful for ruling things out, while others find it uncomfortable or anxiety-provoking, but generally manageable. It’s not uncommon to feel nervous before the test, but most people get through it okay, and it can provide useful information if POTS is a concern.
- Distraction and anxiety management are recurring themes—many people find that anxiety and PPPD feed off each other, and that focusing on something else (even a good conversation or a silly cat video) can help symptoms in the moment. (I recommend a steady supply of memes and maybe a rubber chicken for emergencies.)
- Medications like Sertraline, Effexor, and others are often discussed, with some people finding them helpful for both anxiety and dizziness, though side effects can be a hurdle. Starting low and going slow is a common strategy, and you’ll find lots of shared experiences about this on the forum.
- Vestibular therapy, counseling, and even chiropractic or acupuncture have helped some members, as @Karen_Kiki mentioned. It’s a bit of trial and error, but you’re not alone in the process.
Here are some forum threads you might find helpful:
- Experiences with PPPD, anxiety, and medication: https://mvertigo.org/t/slug/16174
- Stories about diagnosis journeys and what’s helped: Could this be MAV or PPPD
- General PPPD info and support: Persistent Postural-Perceptual Dizziness
And if you want to see what others have said about the tilt table test or similar experiences, you can always search the forum for “tilt table test” or “POTS” for more personal stories.
Hang in there, and don’t hesitate to keep asking questions. If laughter is the best medicine, I’m happy to prescribe a daily dose of dizziness puns—just let me know! (Why did the dizzy robot fall over? Too many bytes of vertigo!
)
Sending support and virtual ginger tea to you and Mia!