I have been on 1mg of Pizotifen for 3 weeks now. I think it has helped a little, but Im wondering if I should stay at this dose or move to 1.5mg.
How long does it take to see results on this medication if its going to work? When Scott visited Dr. Granot he said that it takes 6 weeks, and showed him a graph like this.
Im just a bit discouraged that Im not feeling much better yet, I know I need to be patient because relief could be soon. But I just really want this med to work, Ive failed a few other med trials due to inefficacy.
When waterstone prescribed me piz he said if no difference after 2 weeks I should up the dose, suggesting that a 2-4 week window should be enough to feel some impact - but everyone is different. If you were Scott say you’d be catatonic by now :lol:
Hi Darren,
looking at my notes, it seems that I gave it 2 - 3 weeks or so. But since everyone is different, could you perhaps judge whether you’re still seeing any improvement at 1mg…? If you are, then why not stay there until the ‘diminishing returns’ (as shown by the graph) at that dosage makes it worthwhile moving up to the next dosage?
Tony.
I know I’ve already said this in reply to your PM, but I thought I’d add it here as well in case anyone else is trying the pizotifen and is following your progress.
It took six weeks for the 1 mg of pizotifen to work for me, so maybe you should give it a little longer? My daughter also takes the same dose for hemiplegic migraine and has also had a lot of success with it. However, I would point out that my daughter was very small (not fully grown, and under 7 stone) when she started on it, and I’m not especially bit either, so on a per kg dosage this may well be equivalent to you taking 1.5 mg if you are a medium or biggish bloke. What advice did your doctor give about increasing the dosage?
Wow that’s a glimmer of hope Darren. Since you are tolerating the drug so well I personally would see the 6 week term through before increasing the dosage. I know it is so hard to be patient after battling this thing for so long. I am still on 0.5 mg after attempting to up the dosage to 1mg. I felt so wiped out that I think I’ll wait another few weeks on the starter dose and gradually work up to 1mg by halving the tablet. Slow and steady!!!
