Hello All,
It would be interesting to know the percentage of people who get their MAV in episodic instances or whether it is Chronic. Please submit your answer on the poll 
Cheers
Rich
Used to be episodic and then turned into chronic after 3rd full blown attack. had 2 major attacks prior and went into remission on my own with episodic dizziness/imbalance in between.
ā Begin quote from ānabeelā
Used to be episodic and then turned into chronic after 3rd full blown attack. had 2 major attacks prior and went into remission on my own with episodic dizziness/imbalance in between.
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very similar to me Nabeel. I had had episodes that had lasted a few weeks in the past but this time its the longest its lasted. 10 months and counting
Mine is still constant but a lot better with meds
mine started out episodic and then became constant. nabeel how is topamax going? how long have you been on it? i was reading the thread of āintroduce yourselfā stories and i think i read that you had tried lyrica before and it worked? would u ever try it again? why did you stop it?
Sarah that was a mistake. It was actually flunarizine that I had taken and not lyrica. I stopped taking flunarizine bcz I was completely cured within a month with very mild episodic imbalance that wud occur out of the blue like on average 10 times a month and in those 10 times it hardly lasted very long. I didnāt know about mvertigo back then and did not know that I had to continue taking meds long term under the supervision of my docs. Basically I had no clue what I was dealing and still thought in was suffering from vestibular neuritis. I donāt think the flunarizine did much really. I believe I went into remission on my own at that time cz when my MAV became chronic I tried flunarizine again and it didnāt work. The topamax is going good.its my third week on it, mild side effects which the cymbalta is helping me counter
im sorry to hear about the flunzariine not working the second time aroundā¦i dont know why that happensā¦i would put my money on the fact that it helped you feel better the first time and did nothing the second time- that seems to be a common pattern with these meds. i was sort of similar with lyrica- the first time i tried it i had no idea what was wrong with me or what mav wasā¦it completely fixed my visual symptoms (everything shakes back and forth constantly in my vision in time to my heartbeat). i stopped taking it bc it was sedatingā¦but now i am on it again and it isnt doing anything for the visual stuff. hope the topamax starts helping soon glad the side effects arent bad!!!
Yes MAV is just so unpredictable. Hope u find a med that fixes u up soon
Constant. Better days and worse days but always thereā¦
I get about 4-5 āgood daysā a month and the other 3 weeks are usually not functionable. Never used to get the good days at all! The longest stretch Iāve had was 9-10good days on holiday in August last year - followed by a horrible relapse whilst still on holiday. The year prior to that I had 2 normal feeling days the whole year, one in march? and one in november. The two years prior to that I had no good days. Soā¦hopefully my illness is turning into something, somewhat episodic, but Iāll have to wait and seeā¦ Maybe by next year Iāll get 6-7 good days a month.
waspcharmer - what are your good days like? is that feeling totally normal and not dizzy or is it just less symptoms than other days? x
Hi Jem. Good days comprise of feeling somewhat almost comletely normal, very few triggers, but still some noticeable. So, occasional moments of trigger-induced dizziness rather than constant throughout the whole day, no triggers needed! How bout you? What are your good days like? I get excited when I have themā¦ Then realise Iāll be Iāll again soon so no point starting anything, you know?
Hi Trish
My good days prior to my relapse were never symptom free but the dizziness, fatigue etc is just a lot milder and I can do more stuff that I want to do. But I never feel normal and I canāt really relax because like you say it can go worse again any time x
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Hi Trish
My good days prior to my relapse were never symptom free but the dizziness, fatigue etc is just a lot milder and I can do more stuff that I want to do. But I never feel normal and I canāt really relax because like you say it can go worse again any time x
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Well said
Episodic but only because well managed with nori xx
Chronic dizziness here with occasional acute vertigo āattacksā which are much worse.
Chronic dizzyness with up and downs. Even when i feel my best there is still something not right!!
Was episodic till I was 23 then the big bang happened. Not had a day without symptoms since. Middle of my pregnancy last year I had days of feeling 95% something lurking off feeling but not dizzy as such just when I was tired. But in three years never 100% became housebound after my son three months ago feel over the worst but like others say can relapse any time but I felt at least I had a reason why it went so bad itās worse when you just donāt know why x
Chronic daily attacks here. Am still in the process of getting a firm diagnosis but the confusional states I go into at the same time as have balance problems suggest I may be having basilar-type migraines.
-Wexan
Mine was chronic for months, with varying levels of intensity. Since being on ami itās become more episodic. Not as obvious as particular triggers, but sometimes it stops me from doing things and sometimes I donāt notice it. Definitely affected by hormones. Hormonal weeks decrease my threshold it seems.
Chronic dizziness with daily worsening episodes.