I wanted to wait untill I posted this but I hardly visit these groups anymore because I am out living my life but it’s important to come back and give positive stories to those who are in the thick of this horrible disease.
I have had vestibular migraines probably as young as 10 I would get episodes of it lasting months or years on and off from the age of 14 BUT years of normality inbetween and nothing as bad as what I experienced a few years ago or nothing that warranted a trip to a doctor.
Then 4 years ago I woke up and my world changed I experienced 24/7
Pressure in my head
Tingling all over
Headaches ( not always though )
Feeling spaced out ( like I’m here but not )
I’m sure there’s more but this is what I remember .
I visited over 10 doctors some great some the worst , tried over 10 medications with lots of side effects.
Recovery was not days or week for me more months years , this dosent mean yours will be we are all different . I was a shell of my former self, I was bed bound for 6 months to a year , and it took a good 2-3 years before i was living with so many set backs and relapses. I was suicidal , depressed BUT these groups , therapy and good friends ( lost a few too ) got me through.
I eventually took venflaxine 150mg which helped a lot altho even before this I had got to about 60% through time, I have recently added in Botox which has also helped.
I would say I’m 85% back to myself the reason I say 85% is because I still have mild pressure in my head and feel spacey mildly and then it gets worse in shops ect BUT honestly I am so GREATFUL because I never thought id even get here and I am also so sure I will get back to being 100%.
One thing I’ve learnt and accepted is I will always have a migraine brain and that’s ok, people live with a lot worse. I have triggers and that’s ok I live a little more mindful but it’s no biggie because I am LIVING again.
Search my name in these groups and you will see just how bad I was. I hope this post give you all hope , WE CAN RECOVER from this my neuro always said NO ONE is stuck forever but yes it can go on a while and it’s not a quick fix for a lot of us but there is light at the end of the tunnel.
Thank you for everyone here who helped me , sent me a message I have kept my promise of always reaching out to anyone who messages me and spreading awareness of this condition.
Stay well everyone