Just discovered this forum - it’s Fantastic, very much appreciated, and oh so necessary!! Thank you!!!
Here’s my story -
In my early 20"s (I’m 40 now), I was diagnosed as having panic attacks. After many Dr.'s, and many tests I finally took my neurologists advice and saw a psychiatrist. He referred me to a cardiologist after hearing that I had a heart murmur. Anyway, the cardiologist diagnosed me with Mitral valve prolapse (very innocent, common condition). The psychiatrist (who I really liked, even though I didn’t feel I needed to be there) prescribed Inderal (beta-blocker), saying “give it a try, it may be all you need to kick these panic attacks”. Anyway, it did. I was on Inderal for approx. a year and a half. My panick attacks disappeared and until recently, I always thought it was it was more of a placebo effect, but it didn’t matter.
Then about 3 years ago, out of the blue I experienced a terrifying vision problem. I was reading, and noticed there were blank spots in my vision, then it changed to this “zig-zag” pattern moving across my field of vision. I was so scared!!! By the time I got to the ER, it had cleared up completely. The ER doc told me it was probably due to a combination of taking Sudafed (for my sinus problems), caffeine, and cigarettes. I went home that day extremely exhausted - quite the same way I used to feel after a panic attack.
I didn’t have any more problems like that until around this past Christmas. I had a serious case of bronchitis and was down for about a week, it cleared up, no problem. One week after that, out of nowhere, I had the very same vision problem again. Once again, it only lasted for about 20 minutes, and cleared up, but I was very, very, scared. My sister said she thought maybe it could be migraines, because I have 2 sisters who have been diagnosed with them, both started right around 40 years old, however, neither have had migraine with aura.
Within the next couple of weeks, I started having short dizzy spells. Very intense, but very short. I kept thinking I was probably coming down with an ear infection. My family doctor didn’t find any evidence of infection, and said it was probably my sinus problems causing my eustachian to become blocked. She gave me a nasal steroid, and a decongestant. I ended up back in her office 3 times in the next week and a half, because my dizziness was getting worse, and becoming constant. She did an ekg, and some blood tests - all were normal. She said I must be coming down with viral labyrinthitus, and just wait it out. Wait it out I did, in fact I still am waiting it out. (During one trip to the ER they did a CT scan (normal), and sent me home with meclizine for the dizziness and told me to go see an ENT.
I went to see an ENT about 2 weeks ago. They did a hearing test, it was normal also. They scheduled me for an ENG test, which I called and cancelled. I just didn’t want them putting water in my ears and making me any dizzier than I already was. Besides, from what I was reading about Labs on other forums, the ENG test was not a really very reliable test. (I don’t know if thats true, maybe I was just afraid of being told I have Menieres. I didn’t really care for the Doctor either. )
Anyway, here I am. I don’t know what I have. I can relate to just about all of the Labs symptoms, including this dizziness that just won’t go away. It’s strange, but all the doctors I have seen say that Labs should clear up in 6-8 weeks, but it seems not always for many people.
I can’t help but think my panic attack problem many years ago, was maybe actually migraine-related. I responded beautifully when I took the Inderal, and come to find out, I think its prescribed for MAV. Anybody have any insight?
I’m so tired of being dizzy. I’m a single Mom and I really have to get back to work, I’ve been off work for weeks now, but I just can’t seem to shake this never-ending dizziness.