Postpartum MAV/PPPD

Hello all!

I have read a few postpartum/pregnancy related stories being a MAV/PPPD trigger but wanted to share my experience. I have had an attack after both pregnancy’s- my first experience was late 2016 and it scared the heck out of me being a new mom. I ended up in the ER panicked by the imbalance and had multiple tests done (all normal) and followed up with an outside neurologist who told me I had PPPD. I was out on Zoloft and recovered within 6 months 90%.

I was terrified for my second pregnancy but knew I had a plan if it were to come back (I was off Zoloft during pregnancy). Within a few days after delivery (March 2019) the dizziness returned. I started Zoloft right away but it’s been 4 months now and I’m still dizzy with light/sound sensitivity, ringing ears, nonstop tension headaches, and lots of visual side effects I don’t remember having the first time around.

I tried topomax for my headaches but hated the side effects (not for me).

I’m switching now to Cymbalta, hoping an SNRI will help.

Glad I found this forum it’s hard to connect with others about what I’m experiencing, it’s such a hidden illness! I’ve always been motion sensitive, had occasional migraines with aura, but never had an attack of such extreme long lasting dizziness until my first postpartum experience. Sucks! But I have hope for another recovery.


Sorry to hear your story.

Try Effexor instead of Cymbalta as folks have better luck with it. Weaning off both Cymbalta and Effexor are hard , keep that in mind.


Hi Megan, you have found “your people” here! All recovering the best we know how. I have not heard much on the use of Zoloft, although I’m relatively new also.
Here is a graph that James @turnitaround put together for us of the medications most used by people on this board.
Also, not user if you have been around Dr Hains website yet, but an incredible wealth of information here: Migraine Headache


sorry you are going through this, I hope you start feeling better. You got better once! I am a fellow post partum mav dizzy mom. I am on venlafaxine (effexor).


Hi Megan, welcome to the forum, and sorry that you’re also having to fight MAV. With a new baby - and a child - it can’t be an easy thing to do.
I became dizzy for the first time a few weeks after giving birth, am now on my second occurrence of dizziness (after surgery). I still remember how scared I was to drop my baby in the stairs.
I’m currently on 80 mg nortriptyline. Wish you a good recovery :heart_eyes:

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Thank you! Did your current med work for you the first time around too?

Thank you! Are you finding relief from venlafaxine?

Thank you so much for the info!!

I didn’t use any med the first time round, I recovered naturally after three months. Different story this time.

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