My kids suffer from a type of sitution doctors don’t realy recognize or know about. Their attacks come at very exact timing every 65 days. (we plan our holidays accordingly)
The attacks last a week and then go away.
I found an article called:
Cyclic Vertigo With Predictable Recurrence
written by: Danielle Lobel, MD, Lydia Eviatar, MD
I am not sure if we fall into the category of MAV though neurologists told me that my kids have migrains, but the special thing here is the predictability and a few other things like the set on time - always in the early morning when they wake up.
Would you consider adding this situation as a special topic so that more people with this situation be able to meet?
I live in Israel and no doctor has ever seen this situation. On the net I found another mother with a daughter like mine and she has been trying to treat her daughter 8 years unsuccessfully. My daughter has had these attacks 4 years. My son one year.
Hi Scott:
Thanks for your reply.
Ofcourse I saw the thread.
It might be a mmigrain variant.
Thanks to this forum I have heard of another boy with the same story.
From the articles I found the normal migrain medications did not work.
Migrain seems to be a name for so many different mechanisms.
The last neurologist we saw prescribed Immitrex for my daughter but that doesn’t help the dizziness.
She is taking B2 ALSO, AS HE SUGGESTED AND WE SHALL TRY SOME SORT OF ANTI-HISTAMINE FOR THE DIZZINESS NEXT TIME ROUND.
But, I think until someone discovers the mechanism it’s all a shot in the dark.
Hi Reading posts with interest my 14 year old son has had this for nearly 2 years. A weekly attack for up to 7 days every 75-79 days.
He has tried different meds with no help until his doctor put him on 40mg twice a day of Propranalol. We have now got up to 93 days attack free. Fingers crossed broken the cycle. Just wanted to share some good news, will keep you informed.
My daughter has the same condition: cyclic vertigo with highly predictable recurrence. She had episodes every 80 days or so when she was about 3, but the period has slowly increased to about 150 days now. (She’s now 15.) She has other symptoms too (headache, nausea, light sensitivity), but vertigo is the big one. I’m very interested in hearing from @baresnowy. Did the Propranalol continue to work? We’ve tried just about every medication you could think of, to no avail. For anyone else who has this highly predictable vertigo, I’ve set up a facebook group called “Cycle Vertigo Support Group.” I’d love to hear from you.
Hi! We have been dealing with the samething since my 11 yr old son was 18 months old. Have you found anything that works? If he stays up all night, that’s what works for him.
I am an adult with this. Used to be every August for about a week… A few days after 2nd covid shot it came back in March for 3 months, then the next year ( this year) it came back May 15 and as of August first has not resolved. No answers .
No clues here, but this interests me as my daughter has cyclic vomiting syndrome - a migraine variant. I bet the same meds would work for her. We treat abortive so far
Hi my name is Marissa and I have been experiencing the vertigo you are describing for 15 years. My vertigo is cyclical. It comes every 70 days and lasts 1-2 weeks. I have went to so many doctors and have been on numerous medications. I even tried acupuncture and other vertigo exercises but nothing worked. I out grew my vertigo when I was 18. The doctors believed I would out grow it. They also said that my vertigo might have been hereditary because my aunts get it a lot. My vertigo started when I was three years old. I hope this helps someone realize they are not alone. If anyone has any questions let me know.
Hi Marissa
My 12 year old son has these cyclical vertigo episodes every 60-70 days that last up to a week.
I’m just wondering if you ever found anything that helped ease the symptoms?
So glad you grew out if it. Gives me hope!
Thank you