So we are doing well… Thank you to all who have signed, shared, tweeted etc etc etc.
We have achieved a grand total of 121 signatures after a week. I know it doesn’t sound like much, but I am really pleased but I have been so poorly I have done nothing really to get out there with it.
But which ever way you look at it we need to times it by 1000 to hit our target, so I am looking for some help for the next stage…
I have currently posted the link on the following support forums:
Meniere’s Disease Uk
manage menieres uk
I could do with some help searching out as many forums as are out there and posting the link for the petition, am happy for people to copy and paste the message I posted, write their own, or let me know the web page and I will do it.
All I ask is that we update this page with any we have found so as to not duplicate effort??
Also, I’m trying to list all the different balance disorders, so as to ensure that we don’t miss any, so far I have:
Chronic fatigue syndrome
Can you help me complete the list.
Please if you can just spare 5 minutes to google search some forums, it would be such a help, and any ideas on the next steps.
I have been in touch with the Migraine Society, I have a call back with them tomorrow to look at how we can work together on this so that is good. Want to do the same with all the other Society’s.
Also will be contacting the General Medical Council, as I have heard that they have been pushing for improvements in treatment of balance conditions
Would love the help if you have the time