Prophylactic Valium for Migraine

It’s our favourite wonder drug again. I think some of you have seen this already but it’s an article MAVNY Lisa sent to me months back. Certainly some anecdotal evidence here that supports most people’s positive rating for Valium and Klonopin.

[size=150]Prophylactic Valium for Migraine[/size]

By: Kristina Fiore | June 04, 2010

My father is a migraineur. He’s always been, for as long as I can remember. Countless times as a little girl, I saw him lying on the couch, sleep mask on, a hand pressed over his forehead. His average: eight to 12 episodes a month.

Of course, there was little he could do to quell the pain in the early 1980s, aside from retreating to that familiar pose after a dose of over-the-counter painkiller. Sometimes an emergency department visit was necessary.

Over the years, many treatments evolved – both prophylactic and acute – and he tried them all. Tylenol with codeine didn’t help, nor did Midrin, a combination of isometheptene, dichloralphenazone, and acetaminophen. Preventive propranolol (Inderal) did nothing.

He stuck with prophylactic topiramate (Topamax) until it gave him kidney stones. His least favorite was probably preventive Lithium, which he gave up on rather quickly.

In the late 1990s, when injectable sumatriptan (Imitrex) came out, he was thrilled that it actually worked in the acute setting – although he wasn’t too keen on self-injection (aside from suffering through migraines, his threshold for pain is quite low. He was not a pleasant person to be around when he had those kidney stones, to say the least).

Finally, he was saved when the oral version of sumatriptan came to market – almost. Clearly, it would be much better if one of the preventive treatments worked instead.

But nothing did.

Until last December, when he went to the dentist. An injection-site reaction from some work he had done was causing him pain, so she prescribed him a 10-day course of diazepam (Valium).

Now, my father is a meticulous record-keeper. He still has data on every single migraine he’s had, every day, since the mid-90s when we got our first computer. That’s how he knows his average is eight to 12 episodes per month.

So he found it strange that over those 10 days, not a single cell in his migraine spreadsheet was marked with an attack.

He called his primary care physician. Sure, the doctor said, diazepam is a muscle relaxant, and his migraines could originate from tension. (Although my dad is certain that he doesn’t grind his teeth at night or have TMJ or any other condition that would be indicative of muscle tension.)

The physician said he wouldn’t go around prescribing it to everyone with migraine, but if my dad finally found something that works, he would recommend continuing the therapy.

This course of treatment was surprising to me (you can imagine the cautions I have about daily Valium), so I did a search of the literature. I found nothing on prophylactic diazepam for migraine.

I reached out to migraine experts. In an e-mail, Peter Goadsby, MD, of the University of California San Francisco, said diazepam is never used for prevention, that there’s “no evidence at all for its use,” and certainly no randomized controlled trials.

“There is some general view that it is unhelpful when used regularly,” he told me.

My dad has to disagree. Throughout that December, he had only one migraine – and it was around Christmas, which, of course, involves parties, cocktails, and a lack of sleep.

It’s been six months now since he’s been on the 5mg/day treatment, and his worst month involved just five migraines – less than half the norm. His average is only three per month – a reduction of about 75%.

Importantly, he’s had no side effects (but of course, we will be watching vigilantly for these).

The fact that this old drug can work so efficiently (and cheaply – my dad’s prescription costs just $3.80 a month) speaks to the heterogeneous nature of migraine. Certainly it won’t work for everyone. And I’m sure there won’t be any trials of prophylactic diazepam in migraine any time soon to determine what subpopulations may benefit most.

But it does say that the current approach to migraine treatment may be too general. Migraineurs are likely to be among the greatest beneficiaries of the upcoming era of personalized medicine.

Check out the comments here (some from MDs):

Scott 8)

I am getting more and more interested in valium. I have always been against it since seeing my mother knock it back (along with libriam) since I was knee high. My mum is Austrian and met and married my dad after the war and came to live in England and couldnt cope and was put on it then. She is addicted, been on it for 50 years. So I have kept away from it.

My mum is a real worryier and gets very nervous, yet I have only known her have one bad head (could have been a migraine) ever, she has often told me to take some valium for my heads and I wouldnt… Since reading this board and how it is helping so many people I am thinking of giving it a try. You never know maybe I was born with it in my system and have been needing it all these years!!

Christine

Interessting about your Mom Christine. I wonder if her brain has migraine wiring and explains why she was so prone to anxiety all this time? Imagine if valium is in fact what keeps it all in check for her – the other migraine bits and not just the anxiety.

S

Very interesting!!! In general I am against the use of daily benzo usuage, probably because growing up in the 60’s we were warned very strongly against using it and it was only those in the wrong crowd that took benzos, and then of course, they were taken for the wrong reason. It’s too bad these kinds of drugs have gotten such a bad rap.

Your article may give credence to the belief that migraines are caused by stress and anxiety, or it may not. In my case, I can only tie one case of the many vertigo attacks I have had to stress and probably not any of the migraine “headaches” I’ve had. However, I have found that valium does bring blessed relief tothe motion sick feeling I have over and over. And then there are the countless times I have had stress but no vertigo.

The daily use of valium has been a great debate over and over at menieres.org. One person said they take a daily dose and liken it to someone taking insulin for diabetes. To me that seems very reasonable. Unfotunately, valium will probably never be accepted into the medical field for a migraine preventative - there is just too much potential for abuse.

I’d love to take it every day, but honestly I am so afraid of addition that I don’t dare.

Do any of you take it on a daily basis?

Book

Book
I have been taking a very low dose Klonopin on a daily basis since December, and it has been very helpful. My doctor says to be generous with it, as he feels it is needed in my case…I’m the one that holds back. If i just use that small amount, It takes the edge off and helps me.

Kelley

Hi Book,
I have taken 5mg of valium every night to sleep, I don’t take it during the day unless I have a special appointment like a family wedding say.
I havent had any problems with it. (except going off it too fast) then anxiety kicks in a nd migraines symptoms become worse.
No tollerance probs, having said that I doubt I need it, as I have prothiaden that already helps me sleep now, so I am “slowly” going off the valium to see if the prothiaden 75mg keeps me sleeping.

jen

I heart Valium 

My quack has told me to start using it daily if I want to but what I’ve noticed over the past 3 days is that since increasing the Nort to 20mg per night, I’m more dizzy than usual and the 4mg Valium  hasn’t dented it.

I’m hoping tho my increased dizziness is just part of the adjustment phase of increasing the dose… At least I’m prayi g that’s what it is. My head just feels a heap more swayey/swooshy.

Muppo

Hi Muppo,
I think your right, it’s just something that happens during the start up faze, every trial and I’ve done a few, has been the same, more hell before a good result.
Except for topamax which was the other way around, the higher I went, the worse my symptoms became, at a very low dose it helped.
I’m sure we’l all find our med one day soon.
jen
xx

I have often wondered about this myself…I have considered trying this on my own. I have a prescribt for Xanax already for anxiety/panic as needed, I have had it for 13 years, only used it a few times throughout the years, BUT my doc has always wanted me to use once or twice daily, but I never wanted to, so I WONDER if this would help me. I WOULD believe that in my case MAYBE panic/anxiety could have triggered the MAV…I have had such BAD panic/anxiety for all these years and then this started and has just grown worse over these years!!! ummmmm…my mind is really thinkning, I would rather be addicted to this if it works than nothing at all…I only have one life…RIGHT?

Any thoughts,
Donna Jo

Hey Donna I agree.
but Xanax is one of the worst though, they act fast and don’t have a lasting effect,so then you take more to get the feeling back again, if you did try a benzo, I’d try valium instead, xanax is notorious for addiction.
klonopin might be a better deal, I believe it has a better half life, not sure? but if your Dr said you should, I’d ask for klonopin instead if you keep it way low like under 2mg? Dr said it’s best kept low.
just my opinion.

jen

Hi

I found this useful benzo conversion chart:

http://www.dassa.sa.gov.au/webdata/resources/files/Benzo_Conversion_Chart.pdf

So since 5 mg diazepam (valium) is equivalent to 0.25-0.5 mg clonazepam (Klonopin) it is easier to take lower potency doses with Valium, therefore if Valium works then stick with that. If, however, Valium doesn’t work even at 5 mg, it might be worth tryimg the Klonopin.

But these two drugs are not the same, and will work differently on different people. The chart’s just a rough guide.

Dizzy Izzy

— Begin quote from “lildonnajo”

ummmmm…my mind is really thinkning, I would rather be addicted to this if it works than nothing at all…I only have one life…RIGHT?

Any thoughts,
Donna Jo

— End quote

Hi Donna Jo,

You won’t necessarily get addicted, even if you take it every day. My understanding is that the concern with Benzos is habituation (needing to take more to get the same effect) however plenty of people take the same low dose of a Benzo every day with no problems, including coming off it. I guess you have to weigh up what bothers you more - the need for a daily drug or the compromise to your life/lifestyle that chronic migraine brings. If you do go with a Benzo most people on this board seem to do best with either Valium or clonazepam.

I’d really like to see society (including docs) get over this reluctance to daily, even life long drug use. If that’s what someone needs to have a life, so be it! There’s a lot of moralising when it comes to drugs associated with mental health (anti depressants, Benzos etc) even when used ‘off label’ for migraine relief. If you have a thyroid condition or are diabetic you’ll need to take meds every day until you die. No-one frets about it or thinks there’s something wrong with them, that they are ‘weak’ or ‘dependent’ if they take those sorts of meds, why the hell is it any different for those of us with migraine? It’s a bloody brain disease for goodness sake…

Rant over.

I second that Victoria,

If I could find a drug that made me feel normal or with few side effects I would happily take it every day of my life (I do that with small bits of painkillers anyway). I wouldnt care what it was. High doses of valium is a different story, I saw what it did to my mum. But its up to the individual to be careful and keep to a low dose, they didnt know enough about it when they put my mum on a high dose. I am going to get some from my mum and give it a go.

I get fed up when you think you hit on something good, take ages getting an appt with the consultant to be told that this drug isnt licenced for migraine (I was told that with verapamil) they wouldnt give it to me. I have a friend doing well on low amounts of prednisone (but because there have been so many cases of problems with people on high doses the consultant wouldnt listen when I asked for it to take it at low dose).

Its like they dont trust us to keep to the low doses or something. Here in the UK now, you can only buy 16 x paracetamol at a time over the counter, the fact that you could go round the corner to the co op and get another 16 packet doesnet seem to occur to them. They say, only 16 so that you dont overdose.

I find it insulting to our intelligence and also annoying as they cant pluck something out of the hat thats going to make us feel better so why shouldnt we be able to help ourselves with something (if you see what I mean) :?

Christine

Well, today was day 3 on 5 mg daily and I’m feeling better every second. Still migraining post pizotifen and had a rather nasty 90 minute dizzy episode this afternoon that required lying don in the board room for 20 min but this is nothing compared to the craziness of last week. I’m staying at this for a while. I’ve got enough V to go for a few weeks at this rate. If I come up trumps and it stays like this I’ll be telling the specialist I want a lifetime script. Done.

Scott do you take the 5mg V all in 1 hit or 2.5mg split dose? And the same time every day?

Gutted the P*ssedoffen didnt work but did you phone Dr Ron back about what has happened?

Thanks, Muppo

Scott …I’m not up to speed. How is your trial with pitotofen going?

Hi Fiona – not good. I wrote in the other thread about the side effects I was getting. Given a new job is kicking off in 11 days I pulled the plug. Better the devil I know right now. I’ve been hitting it with a higher dose of Paxil and 5 mg of Valium every night. I’m still getting migraine symptoms but this is more manageable and predictable so I will stay with this for now. On the plus side, I woke at 6.30 am this morning feeling very calm, looked at the time (which I normally never do) and actualy fell asleep again for another 45 min. This is unheard of. When I wake at 6 am that’s it, I’m awake no matter what with mind racing. It was a pleasant reminder of how I once used to sleep.

Scott

Hi all,

I’ve found that taking a small amount of Valium (1.25 - 2.5mg) before bedtime really helps me ‘reset’ for the next day, and then I function at a much higher rate – I am able to work a full day, exercise, play with my kids.

I only take about 5-7mg a week, however, because I am worried about getting addicted. I never take it during the day.

Almost twenty years ago, I took Ativan for anxiety (3x a day), and I also and drank a lot of alcohol, and had to go to rehab. That scared me, and I went all these years without a single drink or drug – 18 years – until this condition hit me so hard that I simply needed it. I feel a lot of guilt for taking benzos again, but at the same time, they are the only thing that helps me.

I would really appreciate some color on how much Valium is a ‘safe’ dose to avoid withdrawals, and whether Valium is as good as Klonopin, since the doctor gave me a bunch of those as well.

Thanks.

— Begin quote from “longshort”

Hi all,

I’ve found that taking a small amount of Valium (1.25 - 2.5mg) before bedtime really helps me ‘reset’ for the next day, and then I function at a much higher rate – I am able to work a full day, exercise, play with my kids.

I only take about 5-7mg a week, however, because I am worried about getting addicted. I never take it during the day.

Almost twenty years ago, I took Ativan for anxiety (3x a day), and I also and drank a lot of alcohol, and had to go to rehab. That scared me, and I went all these years without a single drink or drug – 18 years – until this condition hit me so hard that I simply needed it. I feel a lot of guilt for taking benzos again, but at the same time, they are the only thing that helps me.

I would really appreciate some color on how much Valium is a ‘safe’ dose to avoid withdrawals, and whether Valium is as good as Klonopin, since the doctor gave me a bunch of those as well.

Thanks.

— End quote

The short answer is that everyone is different, both for dosages and for which Benzo (Valium vs Klonopin) is more effective as well as tendency for dependency/habituation. To me, the dosages you are talking about (nightly and weekly) are practically homeopathic. I don’t get withdrawls and if I find myself habituating I take a time out. But as you have the rehab history I can understand your concern. No easy answer I’m afraid.

Vic

Just found this thread. Valium is the only med that I am taking these days for the dizziness, and I don’t list it because I don’t take it as a preventative. I am really leery of it because I grew up in the late 70’s and early 80’s when they where talking about how addictive it is and how everyone took it. It was so readily available that I had friends that would come home with handfuls of it after visiting relatives, or even their parents medicine cabinet. As a result, I take it only as needed, and only enough to calm the dizziness down to where I can function. If I had Christine’s experience with valium, I probably wouldn’t touch it either.