Anyone who has read my posts will know I was misdiagnosed for 4 years with everything from TMJ, to Epilepsy, to MS before I found the amazing staff under Prof Saeed at UCLH London who correctly diagnosed 2 Perilymph Fistulas (plus another tear) in my right ear. After 3 operations to fix it, I have finally reached a milestone - 6 months past the last op and NO VERTIGO!!! woohoo!
However, if anyone here is under a Dr Sritharan, please note that he incorrectly diagnosed me with Migraine Vertigo even though I had had 2 operations by that time where the PLFs had been visualised TWICE. He was asked to assess me for a court case because my PLFs were caused by whiplash from a car accident and he (in his own words) “does not recognise PLFs” and said I had MAV even though I’ve never had a migraine in my life. If I’d not been under the amazing team at UCLH I would have believed his diagnosis and been trying to fix something that badly needed surgery, with medications like amitrip, so please be aware if you have been diagnosed with MAV, TMJ etc etc you could have an underlying PLF that even some ENTs have never heard of. If you are in the UK then get yourself referred to Prof Saeed and Mr Kahlil’s amazing teams there.
I still have things I am not allowed to do as it could cause the PLF repairs to fail BUT I HAVE A LIFE BACK, I am back out in the world again and as I said, first milestone reached, next one is to get to a year.
I hope all of you find your own Prof Saeed’s and find some end to the exhausting misery that is chronic vertigo but I wanted to share a story of hope that took me 4 very long, hard years to get to and a big thank you to James @turnitaround who kept me going when the light at the end of my tunnel had disappeared.