Iām on these boards after 6 years of managing relatively well on effexor. It seems the effexor has officially pooped out on me in terms of managing VM. My neurologist added propranolol but it is early days and so far no relief. I canāt imagine going back to 24/7 life like this after how long it took me to get some Semblance of it back for the time effexor helped me. And I am blaming myself for getting the covid vaccine as the potential thing that set it back off. I need to hear from folks whoāve had such a backslide and made it out the other side again. Iām trying to stay positive knowing I did it before but itās been months now. I really appreciate any words.
Not sure how near I āqualifyā as I wasnāt stable for six years or anything as near exciting as that but my second (AZ) vaccine brought on a full on 11 days-in-bad vestibular attack of which Iāve only had a couple since starting Propranolol 5.5 years before. Propranolol will work. Got fantastic record for it but for some but not all it can take a long time, many months. In above mentioned case 11 days in bed was followed by about three weeks of vestibular stuff including ārockingā 24/7 but it then settled and I went back to baseline.
I wouldnāt blame yourself for getting the jab. Good on you for going for it. Blame the condition for making us so hypersensitive. Iām currently occupied with the vestibular side effects of a recent dose of the old and familiar Flu Jab. We MAVers canāt win. Periodically something (illness, vaccination, trip to dentist, bereavement to name but a few recently) will just cause a breakthrough. The meds are only keeping it under the surface, with luck. It hasnāt gone away.
Hi Adrir,
So sorry to see you back under these circumstances!
How many months have you been feeling badly? And how long have you been on the propanol? Are your symptoms the same as before or milder this time? The potential neurological affects of the vaccines are so concerning to say the leastā¦ I am so sorry youāre suffering.
