I wanted to share that I’ve had some improvement with an alternative treatment. I know that alternative treatments are controversial so I am in no way recommending this, just sharing.
I have been to all the specialists like everyone else. I’ve been told Menieres, MAV, basilar migraine, cluster headache, and anxiety. This all started abt 5-6yrs ago with attacks of stuffy nose with head pressure, eye tearing and twitching, facial and neck pain, all on the left side always. This was followed by the development of disequilibrium, with rare quick spins. Brain Mri all normal. Along with this, I’ve suffered what they’re calling fibromyalgia since age 20. The last several years, it has settled into my left neck and shoulder pretty badly. After this last spell of dizziness came on in late March, I decided to go back through the Dr route- all tests normal- VNG, MRI. So went back to physical therapy for the left neck and jaw, thinking it was to blame. My therapist, who is highly regarded, suggested that I see an upper cervical chiropractor. I was dubious but desperate, and I trusted the therapist, so I went abt 3wks ago.
The first adjustment was done by the Dr who was recommended to me. I noticed immediate relief of certain symptoms- tingling in hands stopped, elbow pain stopped. I also felt calmer. I was pretty sleepy and slept well that night. I was warned I might be sore. The next day I had some regular left side facial pain/autonomic symptoms. But my neck pain was gone. Day 3 had aching in both sides neck and shoulder. I thought this is baloney! Took advil. Slept well again. Was so focussed in on neck that I didn’t realize that disequilibrium was gone. Day 4 felt great. So great that I didn’t realize how much chronic pain I was in for years until it stopped! Left sided facial pain gone, and no daily cluster migraine attacks. Yay! Then went for follow up in 6 days, and different Dr was there. He adjusted C3 vertebrae, and I immediately felt a stabbing pain from the back of my head, straight into left eye/nostril. I told him and was told to give it time. Well, time did not help. I proceeded to have daily cluster migraine attacks, and my dizziness was slowly returning. Appt yesterday with ORIGINAL Dr. I explained everything and he mentioned how a few patients go out opposite way with c3. He did adjustment. I was again tired and slept well. Noticed immediately that left symptoms abated. I have had a “ghost” of an attack today… Just stuffed nose and increased tinnitus, but NO pain or eye watering/twitching. Knots in left upper arm, neck, face, eye area are gone. I would say I am 70% of normal. Before the “bad” adjustment but after the first, I was abt 85% normal. I go weekly, and am scheduling only when the original Dr is there.
I do not think this would work for everyone. Im not even sure it is a permanent treatment for me yet. What gives me some insight was the instantaneous appearance of my symptoms with the bad adjustment. That was the first time anything has directly triggered my symptoms. So I believe it has something to do with the trigeminal complex near c3, and/or my neck itself. I also do believe my symptoms are migraine for sure. Personal and family history of same weird migraines are established. But I also think that in my case, my neck and/or that region is triggering migraine activity. I go for neck mri tomorrow so that will be interesting. At any rate, if this chiropractic does not end up working long-term, I plan to persue injections into the c3 area (as are done for occipital and trigeminal neuralgia) in hopes of stopping pain and resulting migraine.