Hi all, Just wanted to ask a few questions to people who are more clued up about this illness than me:
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Is MAV progressive? Do the symptoms change over time into more severve symptoms (generally speaking) - does the migrane mechinism ever change back to “normal” migraines without attacking the vestibular system
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How would you describe your dizziness? For me, it started with a two very brief spinning / swaying sensations then progressed into a feeling of being on a boat then balance issues, then into subjective-spinning sensations, then into sinking feelings. Although my balance since 3 months ago has improved as I was having days of regaining my balance and then losing it and it was pretty much all over the place, now my balance seems a lot more stable. Is this MAV changing, or is this compensation of the brain?
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I have forced myself to sit on a chair during the day instead of lying in bed all day and I try and get out walking on the days where I feel well enough to do so. However I keep myself levitated from the ground using my legs and objects dont seem to move up and down whilst doing this but if I take away my legs as support and sit in a NORMAL position, it starts happening - has my brain compensated to this strange way of sitting or am I just insane?
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Is caloric testing / VNG is a good idea during this illness? I was told by a neuro who diagnosed me with MAV yesterday that they would be a waste of time. But I have them tomorrow at 1.30pm.
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This question is entirely based on the individual but I want to ask this anyway - How long did it take you to start living a half normal life again? I miss sitting normaly or being able to sit on a sofa, or doing some DIY stuff around my flat. I miss not living at home, I am stuck at my grandmas at the moment and I really want to go home but everytime I start making preperations things get worse and its like there is no escape.
I dont know how or where to turn to make my life better. I have no friends and due to this I have lost my job which was my only social outlet. I dont feel well enough to join exercise activitys. I miss having any chance of a life, going out to visit people. Will I ever be able to just walk outside and feel normal, or go shopping, or take care of myself again? I feel like I am in such a mess and I dont know how to push forward now.