As there’s not always positives with this mav rubbish I thought I would share this photo of me and Sian ( a fellow MAVer ) some of you may of seen her YouTube videos as she’s made loads about this condition. This is how we first connected. We met up for tea and after 3 years she’s now 95% some key points I should note .
She failed most meds the first 18 months I also agree with her when she said her vestibular system was so bad at that point throwing anything at her brain was just making her worse but over time a preventative then did help ! ( flunarazine )
It took her 18 months just to be able to walk further than 20 minutes without getting dizzy . Now she can walk miles
She still to this day can’t be on her computer for 10 hours without getting some symtoms but nothing major or too bothersome
She drinks alcohol eats everything and drinks coffe and is fine .
She was bed ridden for months on end and now she is living a normal life
She also told me I am apparently far further in recovery than she was at my stage ( I’m a year in now )
Either way I hope this brings hope and helps I know it did give me a lot of hope picture below