Hi all, I’m new here and I can see many of you are trialling pizotifen and under Dr Surenthiran. So I started getting these symptoms last year in October after a concussion. I saw a different neurologist and the combination of 10mg amitriptaline and 30mg atogepant worked 70% until it stopped working. Started seeing Dr S, I’ve been on pizotifen 4 weeks now and I don’t see any improvement as of yet. Is this normal? I also notice more dizziness maybe from the meds? I see some positive results with pizotifen, how long did this take to work? Also has anyone been able to drive again? I’m so upset about not being able to drive
Hi Sanya, I just replied on your other post, but to reply here 4 weeks is a very short time to see improvement, if you can tolerate Pizotifen I’d give it lots more time. I was also under Dr S for several years and Pizotifen helped me a lot.
Regarding meds that stop working - often that’s what we interpret it as but it can also be that we’re having flares and the meds are just not controlling the migraine well enough yet. I was having lots of flares for 2 years still until it finally stopped.
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The standard recommendations for any migraine meds is to give them a solid three months to see if they begin to work or not. I know it feels like a long time to wait, especially when you feel awful and can’t do the things you want to, but unfortunately that’s the way it is with this condition. The meds can take three months to start working so if you can tolerate them without side effects then keep going. Hopefully you will feel some relief soon.
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