Symptoms

Specific Illnesses & Conditions VM/MAV
1

These are the symptoms that I experience:

*Feeling of moving when I’m not
*A swaying/rocking sensation
*Feeling of being pushed forwards/backwards
*Constant feeling of movement inside my head- feels like a pendulum (sometimes like an intense surging/swinging sensation)
*The floor can feel as if it’s moving when I’m stood still
*‘popping’ in ears (usually my right)
*Fluttering sensation in ears with certain noises (usually my left)
*Sudden high pitched ringing in ears (usually my left)
*My eyes often feel out of focus and I have difficulty following objects
*I have visual ‘ghosting’ (slightly raised image of an object above itself)
*Brain ‘fog’ and difficulty concentrating

Can anyone relate to this? An ENT doctor suspects it’s labyrinthitis/vestibular neuritis.

2

How long has this been going on? If it’s chronic (months, years) that’s definitely not VN/Labs! (imho)

3

It’s been going on for well over a year

4

So you need to find a new doctor to seek another opinion. I find that a very odd diagnosis. You don’t have a viral infection for more than a few weeks, let alone a year!

And PS whilst it’s a fairly controversial opinion, I don’t think even a lot of acute symptoms like this are actual viral infections, it’s simply a cheap way to explain this to a patient, somewhat of a dogma. There is no test which can ascertain that it’s a viral infection.

There is surprisingly a lot of development room left in this area of medicine …

For next steps I’d discuss trying the MAV treatment protocol with your physician to see if you can at least find ways of making yourself feel better.

5

Your symptoms are similar to what many others here describe. Most of them have been told by at least one doctor that they might have MAV (migraine-associated vertigo) or VM (vestibular migraine).

Here are a few other threads here that you may want to read:

https://www.mvertigo.org/t/are-those-vm-or-mal-debarquement-symptoms/14916

https://www.mvertigo.org/t/new-looking-for-insights-and-support/14951

https://www.mvertigo.org/t/new-member-posting-for-help-relief-and-answers/14133

https://www.mvertigo.org/t/new-here-diagnosed-with-mav/14654

6

I was told by 3 doctors I have vestibular migraines. Yes, I went to three doctors in disbelief about this.

I had a bad episode last night from the weather which I’m still feeling some of today. You’re not alone.

Find a neurotologist. They’ll probably talk about prescription meds.
First, have you tried the migraine diet and also trying any supplements?

7

I haven’t tried the migraine diet or any supplements, I’m also waiting to see an inner ear specialist next month.

8

You could try the migraine diet to start and see if some of the foods trigger you. I notice trigger foods within 10-15 minutes.