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The ENT Consultation from hell maybe?

”I started to feel odd soon after New Year. I would be walking the dogs and be unsteady on my feet. I began to hold on to trees. I wouldn’t look round to see if Mini Puppy had stopped to sniff, as that would make me dizzy.

”It got worse. I couldn’t get out of the car. I felt so dizzy in the Co-op, I’ve never dared go back. I’d wake up, and the stripe of light from the window seemed horizontal. I’d be watching TV and suddenly the room would spin. I would only have a minute to make it up to bed. Once I’m dizzy, I vomit for 24 hours. These attacks have grown more frequent: every few days.”

Read this by Liz Jones in ‘You’ magazine back in July and immediately thought she is probably ‘one of us’. Following her hospital scan she updated thus:

”if I get the all-clear and a cure for the vertigo, I’m determined to enjoy life. To not dread the walk upstairs. To be able to turn my head to watch Mini Puppy sniff. To go to the Co-Op without hanging on to strangers. That’s all I want. That will be enough”

I’d have hated to disillusion her about the ‘cure’ but her symptoms certainly seem familiar. Therefore, having it read, I felt I really had to post this link to her recent ENT consultation experience. She certainly was very unlucky. I wouldn’t want it to put anybody off attending a vital appointment. It can’t regularly be that bad. It will be fascinating to hear her eventual diagnosis.

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Makes me angry that so many of us have had this same experience. I saw ENT 3 times and they then just said it was all in my head - like that was any help. I had to go private (thank you to my Aunt for paying) and got listened to for the first time in 13 years.

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I’ve seen 2 ENT’s in London and neither of them said anything as dismissive (and clearly as preposterous) as that.

So I don’t think they are all bad.

One neuro-oto admitted to me that “we (science) do not know how the inner ear works”

Reassuring!! :sweat_smile:

From that I concluded that all bets are off.

I only had good experiences as well. Before my major VM attack in May, I saw my GP for dizziness and visual auras and he said “it could be vestibular migraine and there is preventative medication available”. I decided that I can handle the symptoms and that I won’t take medication.

Then when I had my major attack which landed me in hospital for 4 days, the neurologist immediately said “this is vestibular migraine, but we need to rule out benign positional vertigo”. She asked a physiotherapist to come and see me and he supported the diagnosis of VM. She also offered medications (including pizotifen) which I all took.

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You’ve been very fortunate in that case. All those enlightened people. Cynic that I have become I can say your experiences prove you are not a U.K. resident😉. I’ve had this condition since 2003 and it was only last year I first happened on a GP who recognised it and I’ve since actually had a consultation with another who does. I doubt you’d get a similar experience here.

Getting back to Liz Jones story I must admit to being amazed that any ENT consultant didn’t have a mask through which she could lip read. That is inexcusable. The fact that he was unaware of the existence of her scan came as no surprise. Same had happened to me with another ailment in the past. Worst part I can see is she’d waited 4 months for what then amounted to a ‘holding’ exercise making no discernible progress on the day. That I considered a total waste of an appointment. It will be interesting to follow her progress. I’m all but convinced she’s ‘one of us’.

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