first I apologize for my english. I’m from Germany. For about 4 years now, I’m struggling with symptoms no doctor can explain. I’m perfectly fine over daytime, but once I go to bed and right on the verge of falling asleep, all of a sudden I get this massive nausea-attack out of nowhere. Of course then I open up my eyes and see the whole room is spinning. This attack goes away as quickly as it came and I never vomit from it, though it feels like I have to. But when I lay down again and take the second attempt to sleep, it happens again. And again. And again… everytime when I’m about to drift off to sleep, right in that very moment. Every night! No exceptions.
I’m so exhausted. Usually it takes 10-20 attempts until I finally fall asleep, which means that I finally sleep 3-5 hours after I went to bed cause this s***t keeps me awake.
I’ve been to many specialists with this problem. ENT, neurologist, endocrinologist, physiotherapist, orthopedist, had a gastroscopy, have been tested for sleep apnea (negative), MRT… No one has ever heard of this problem before and I’m feeling completely lost.
This problem is completely unaffected by everything. No matter if I’m happy, sad, eat before sleep, don’t eat before sleep, sleep on the side, back, sitting, my bed, sofa, not even at home… I’ve tried lots of drugs too. Pantoprazole, dimenhydrinate, domperidone, metoclopramide, even ondansetron. None of them have any effect.
I’m so desperate. Is there anyone who had this problem before and KNOWS what it is? And how to beat it? Please, if anyone has the slightest idea what is wrong with me… let me know. I don’t want to live the rest of my life with this.