Dr S told me that to “do the diet, do the lifestyle and take the meds. It’s like putting a plaster on the brain and eventually the body will heal itself”. I saw him after 2 years of this and I try and hang on to his words of hope. It’s definitely not easy though!!!
Dr.: “oooohhh yesssss, it burns out … can’t tell you if that will be in 6 months or in 6 years time but it will definitely go”
Me: /do a little dance
NB I have Secondary Hydrops but I believe this is the same as MAV for some cases (I was diagnosed with MAV initially). Besides, we have a few Hydrops sufferers on here too, you’re welcome
I saw Dr Priesol at Mass Eye & Ear, this is what he told me when I first met him:
“I’ve treated astronauts that have had this condition and have gone back into space. 90% of people make a full recovery with time and the 10% that don’t usually have bilateral issues that are very rare”
love this topic:
my doctor said: take the meds, sleep, change diet and you will start feeling less rocky, less anxious and more in control. Then she did some basic neuro testing/ balance and said: you are perfect. Dont work to much and enjoy life. I am in fact feeling a little less rocky and little less anxious (thanks effexor)
NB I will edit this to keep it on message: positive quotes only and try to keep them pithy, relevant to as many people as possible, not overly personal