Anyone else get this??
I do the dishes and god forbid I let a pan hit the bottom of the sink! My own voice is too loud in my head sometimes, talking on the phone is hideous and even a hiccup and can send me for a loop. I’ve been on Topamax since Sept 7th, started 12.5 mg, then 25, 37.5, then at 50 had breathing difficulties so went down to just 25 at night. No matter what this symptom has not yet abated!
If anyone else had this, did it go away? How long did it take?
Thanks,
K
I know when I was titrating up all of my symptoms seemed to get worse. At one point I had extreme sound sensitivty for a few days. This all stopped about a week after I stopped increasing my dose.
Thanks ajs,
I think in another week or so I will reevaluate, unfortunately this drug had a nasty SE on me at 50 mg so it may turn out I need something else after all ;( too bad so many people have found such relief from it! But I’m not giving up yet.
K
I would look I to SCDS…
Update:
Had to stop this drug; trouble breathing and disorientation. Bummer; another one bites the dust.
Sound sensitivity disappeared along with Topamax. Wonder if it is listed as a SE??? It should be! Was horrible for me.
K
I’m not on Topomax but I suffer from intense sound sensitivity and making conversations with friends on phone calls is really difficult and painful for me. I was wondering if anyone suffered from this as well? let me know! I wear earplugs daily but the sound of my own voice in my head triggers the same for me. This makes life so hard. Didn’t want to start a new topic but definitely have sound sensitivity problems. Why do sounds give me a huge sensory overload that I cannot function? It makes daily life so hard for me. Thanks for responding!
I used to get it really bad, but it naturally decreased along with other symptoms. I still get some distortion when listening to some types of sound (e.g. too close to church organ, the bass, baritone gets me) but the sensitivity has improved.
It’s very unpleasant.
Just keep up with the meds and lifestyle changes but try not to avoid sound as I think part of the recovery is around recalibrating things back and that requires exposure.
I used to get terrible distortion from piano, but the more I’ve got back to piano the less it happens.
I found the side effects on Drugs.com. If you will follow the link you will find your answers. I’m sorry to say they aren’t what you want to hear.
I take Topomax as well and noise sensitivity has been a problem since I started the drug. But, the side effects are better than the frequent bouts of vertigo, nausea, dizziness, floating brain and full ears.