I have been on 100 mg Topamax (50 mg twice per day) for a little over 2 months now and was actually feeling quite well on this. My dizziness has gone from being 24/7 to pretty much non-existent, and I have not had a headache in over two months and I was getting 4-5 per month where I needed to take zomig to get rid of them and then felt crummy for hours afterwards. The past few days though, I have noticed some dizziness creeping back in, and have felt a headache coming on this morning. A big trigger for my headaches for years has been hormones, I have almost always got at least 2 really bad migraines during my menstrual cycle every month for as long as I can remember (I have been getting migraines for the past 14 or so years). In the past two months this wasn’t an issue though - and I have never been able to pinpoint my dizziness to hormones since it was always pretty much 24/7 before.
Anyway the reason for this ramble is - do you think this would be a reason to possibly increase topamax? I emailed my neurologist already to ask his opinion…but I am just not sure. I HATE to think I am going to be dizzy and feel like this again. Maybe this is jumping the gun because it has only been a few days and maybe it is just hormone related, but is this what I will be dealing with for a week every month? Is anyone out there on a dose of topamax higher than 100? I am a little hesitant about going up higher for fear of side effects, but when I titrated up to 100 I really didn’t notice much, In my opinion it was harder to start at 50 which is what my doc had me do than to go up to 100.