Tremors/muscle spasms/tingling

Hi Everyone!

I have seen a few posts about tremors/muscle spasms as a symptom and thought it would be interesting to discuss as this is a symptom I started to have in the past 2 weeks.

At first I had twitches in my neck and jaw+ tingling on my face and now I feel weird spasms in my arms. I read the description"internal tremor" and found it accurate.
Do you have similar symptoms, and how did you get these under control?

I hear that effexor / amitriptyline helps some with their tingling issues. Don’t know about the constant twitches though.

Maina :v:

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Hi Maina,
I have had tremors for quite some time too and have mentioned them here on the forum.
Mainly stemming from my neck and shoulders.

Both of the migraine specialists that I have seen have noticed it without my saying anything… of course, I didn’t even know it was correlated to migraine at the time. They called it “essential tremor” and after researching, I see it is very common with migraine sufferers.

The tremor didn’t change much for me with Amitriptyline or Nortriptyline, however when my current Dr added Topomax; he stated it should help with the tremor also… and it most certainly has! Honestly until reading this post, I hadn’t thought of it in a couple of months… so, I guess it’s gone and I haven’t even noticed! Amazing isn’t it how I could just forget about that after years of dealing with it?

You’ll get there! :purple_heart:

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Amazing !! Thank you so much for documenting this success because HONESTLY I thought I was starting to think I am crazy. :muscle: It is SO helpful as I will see my ENT and Neuro next week, good to be documented beforehand!!

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Ps: So happy to read that this is past history for you !!

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Tingling in arms and legs, yes. Once had “lockjaw” spasm in face. But tremors and general spasms, no…

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@Maina Welcome! I had been having spasms in my legs & an intention tremor with my fingers for a long time before I got diagnosed with VM (which was just recently). I haven’t really had spasms much in the past few months since the VM problems started, but I have terrible tingling in my body–mostly legs. I’ve had numbness in my arms and legs for over 8 years, but no one knows what’s causing it, so with the added tingling it is really an awful feeling. I’ve only been diagnosed for a little over 3 weeks and I am Ami, but have not noticed any difference. I am going to give the meds more time to work and hopefully will start feeling better soon. I hope you will feel better soon also!

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Thanks a lot !! Let us know how everything goes. Drugs take some time to work and rewire our brain but they eventually do with time. Hope this will go well XX
Maina