Hi everyone does any one else have feet hand and arm twitches
Just before or during your migraine.
It’s really concerning me.
It doesn’t happen every Migraine, but when it does I know it’s going to be a BIGGIE!
Thanks so much,
jen
I’ve had trouble with muscle twitches randomly for several years. It predates the dizziness so it may be unrelated or just an earlier manifestation of the condition. In my case its mostly the long muscles in my arms and legs - occassionally my chest. Also, as I don’t get traditional migraine headaches I can’t tell you if it is in any way time locked with migraine activity. They assure me I don’t fit the profiles for MS or Parkinsons so I’ve adopted a “huh, wonder what that’s about?” attitude with regard to this symptom.
Chaz
Jen, I want to make sure, this didn’t just start since starting Topa, correct?
Hi juls
No It’s always happened,
Today was worse than ever before, hands arms and feet.
Normally it would be one limb at a time.
Today it was feet and hands.
It only happens when I have a BAD mig,
Maybe once a week.
Sometimes I’ll twitch without the mig.
It’s been going on for 15 years.
Topa well!
I have less brain fog now on the topa!
I’m happy soooooo happy.
Can wait to take my next dose.
The topa is working in some strange way, it’s like I’ve woken out of a bad dream.
Waking up I call it. hehee 
happy Jen
Jen,
How long have you been taking the Topamax now and what dosage are you up to? I’m glad to hear it is working for you. I’m hoping it does the same for me.
Marci
Hi Marci only 3 days now, I’m only at 1/4 of a 25 mg pill, I’m doing as Juls did and only upping in a 1/4 of 25 per week just to stave off SE and take it slow.
jen
Oh Jen, I’m so glad it’s doing better and better for you. You probably feel more clarity than ever in your life the way you’ve talked, yes? No wonder you’re so happy.
That’s what it felt like to me - like a fog lifting. You put it better, it was like waking up!
J
Juls thanks so much and YES , you were right!
I’m so excited to wake up, hope this keeps happening, we all know what happens when meds just dont keep working well.
I dont want to lose the plot again, losing hope is one of my biggest problems.(depression sets in)
so cant wait till next week when I take a larger dose.
but I know I have to take it slow.
my rocking hasnt stopped yet , so I’m waiting for that ,
but then I did have a big mig yesterday so it might take a while.
dont get me wrong I’m having some SE but nothing worse than the mig itself.
Your my angel Jul.
thanks. :mrgreen:
In another thread, i was talking about the viscious cycle of my migraine - i felt as if my illness were breeding more illness.
Now I feel as if hope is breeding more hope.
I realize, based on the experience of others, that mileage varies and this may not give me a full recovery, and it may not be lasting. In addition, as I increase my dosage, the SEs may worsen. But I am, for now, living my life again, and am thrilled to be able to do things that I used to complain about, like taking the garbage out, cleaning the cat box, doing the laundry.
A year ago i wanted to die. Now I love and tend to my husband, my dog and cat, and herb garden more than ever.
It’s good, isn’t it Jen, I’m happy for ya!
Jul (where’s that heart smiley???)
Jul, yea
even a years remission would be good. I havent had a full remission in 3 years.
any relief is good. :mrgreen:
— Begin quote from “jennyd”
Hi everyone does any one else have feet hand and arm twitches
Just before or during your migraine.
It’s really concerning me.
It doesn’t happen every Migraine, but when it does I know it’s going to be a BIGGIE!
Thanks so much,
jen
— End quote
I have experienced muscle twitching all my life. I never noticed the twitching in cunjuction with headaches, but I used to have headaches so often that it was hard to tie anything into my headaches. My twitches are usually in the one of my bicepts, sometimes my shoulders, and occasionally in my cheeks. I understand it is common in migrainers, and nothing to worry about. Since I started the meds they have reduced drastically in frequency.
Yes. Involuntary muscle twitches in different parts of the body. Mostly behind the upper arms and shoulders, sometimes in the legs and back. Much, much less now than in the past. Almost non-existent now.
Thanks everyone that makes me feel more at ease.
To be honest I always felt this migraine could have been some sought of misdiagnosis and more likely something to do with simple partial seizure, hence the fading out ect.
The flinching and twitching didn’t help. Hehee
Hug jen
