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UK newspaper article on MAV

Saw this in today’s Daily Mail.

Love this bit: “Migraine associated vertigo is so straightforward to treat.” !!!

Brenda

Great find Brenda. Thanks.

Yeah, some of the stuff said in there is quite funny. I think this condition may actually be easily treated and the group of us on here probably doesn’t reflect the true picture out there. I mean think about it. If every case was as protracted and horrendous as some of us deal with about 4% of the world population or about 30 million people would be stuffed. 8)

— Begin quote from "scott"

Great find Brenda. Thanks.

Yeah, some of the stuff said in there is quite funny. I think this condition may actually be easily treated and the group of us on here probably doesn’t reflect the true picture out there. I mean think about it. If every case was as protracted and horrendous as some of us deal with about 4% of the world population or about 30 million people would be stuffed. 8)

— End quote

very true Scott… also I am not sure this website would be able to handle so many member accounts… servers the size of a city would be required :lol:

Yeah, you’re probably right Scott but that woman was only ten weeks into taking meds. I’d love to know how things progressed and if her recovery was maintained.

Brenda

Thanks for that Brenda. It’s good to see this being publicised.

I disagree about MAV being easy to treat, I have to say! I agree with what Scott says about the people on here generally tending to be those who respond less well to treatment and being the more challenging cases, but migraine is difficult to treat on the whole, and hardly anyone finds a combo of trigger avoidance, diet and/or medication that gets rid of migraines altogether (whatever the type of migraine, whether MAV or the more common headache variety).

1 Like

Hey Brenda, I got excited when I saw that article, at last something to prove what we have, I sent it to a few people, but then they said, why didnt the pills work for me (as they had for the woman in the article). Oh well, I have cut it out the paper and I am carrying it around from now on, so when, for instance I cant be laid back at the dentist, I can just produce that instead of trying to explain about the dizziness while they look at me as if I am just plain awkward!

Christine

And you can’t always believe what you read in the Daily Mail :lol:

D-L xx

Hey all, I’m new to this site having been brought here as a result of reading this article.

I am currently awaiting tests at the local ENT department due to symptoms which seem to fit exactly with MAV but also fit with inner ear problems e.t.c. I’d never heard of MAV but the more I read about it, the more I think this may be what I’m suffering with. BUT I’ve been advised by my family to go through the motions with the ENT department first to see if it could be an inner ear problem or not.

I don’t normally read the Daily Mail but I am grateful for this article as, like I said, I’d never heard of MAV before and at least now, if my tests are ‘normal’ at the ENT department, I can go back to the doctor armed with other information rather than them thinking ‘she’s just being awkward, nothing wrong with her’.

Emma x

Hi Christine, yes, one of my thoughts was that folk would think if the remedy was that simple why wasn’t I better then. From that perspective that article could well work against us but as you say at least MAV is getting publically recognised now. I just wish the subject had been covered in a bit more depth and not given the impresssion the answer was always so simple. But hey, it’s a start. Love your idea of carrying it around with you! :smiley:

And Dizzy Lizzy, I hear what you say about the Mail! :smiley:

And Emma, how great that you read the article and it was a light bulb moment for you. Good luck with all yout tests and reaching a diagnosis. Often with MAV it’s a process of elimination first of all.

Beech - how are you doing lately? Yes, publicity has to be a good thing, it’s about time MAV was in the public consciousness.

Brenda

Yeah, I agree that they way they gloss over the ease of treatment is annoying, but I would MUCH rather have people somewhat aware of this condition and then have to educate them on how difficult it can sometimes be to treat it than to have them think I am crazy when I talk about how migraine headaches (that for me don’t even hurt!) make me stumble around like a drunken sailor. :slight_smile:

Small victories.

And some people who are diagnosed with MAV probably WILL be treated somewhat easily. I look at how well I have responded to topamax over the past 2 months. If my doc had just given me that first instead of messing around with a bunch of other meds, well I would have been mostly back to normal in a matter of months instead of being screwed up for almost a year.

I am currently awaiting tests at the local ENT department due to symptoms which seem to fit exactly with MAV but also fit with inner ear problems e.t.c. I’d never heard of MAV but the more I read about it, the more I think this may be what I’m suffering with. BUT I’ve been advised by my family to go through the motions with the ENT department first to see if it could be an inner ear problem or not.

I think that’s good advice Cotton. The process of elimination is always useful with MAV. Do you have to wait long for your tests? Not knowing and waiting are the hardest things to deal with. Good luck.

Brenda

— Begin quote from "Brenda"

Beech - how are you doing lately? Yes, publicity has to be a good thing, it’s about time MAV was in the public consciousness.

Brenda

— End quote

A bit better thanks. Have been taking propranolol and pizotifen for a while now and I feel like things are starting to settle down, although I’m having up and down days. I am going on a flight on Sunday for the first time since I have had MAV, so am nervous, but the propranolol help keep me a bit calmer!! Thanks for asking after me :slight_smile:

Another UK newspaper article on vestibular disorders. I discovered it years ago soon after my own MAV diagnosis I guess. Good publicity but rather misleading in that it states it’s so easily treatable. May be for some. I understand from others who subsequently spoke to Toria, it didn’t end there. The preventative helped I understand but as we all know, it’s not a cure or even unlikely to have total control.