Hi everyone, I have a long history of what apparently has been vestibular migraine, but I was never diagnosed until about a year and a half ago. I’ve been seeing a otoneurologist (I think that’s how you say it) and have been on desipramine for about a year. I started on 5 mg per day and now I’m on 30 mg per day. I haven’t heard of anyone else on this forum taking this medication so I don’t really have any frame of reference for it. My symptoms were episodic for about 29 years and happened very rarely-in fact so rarely that I thought it was gone forever! Apparently not and now I sometimes feel totally normal for 3-4 months then I’ll have an “attack” and it will take me 2-3 months to recover completely. I had a terrible attack on June 22 and I’m still feeling “off”-this is the best way to describe it. I actually felt better in July but then it kind of resurfaced, but different, if that makes any sense. It also marks about 3 months that I went up to 30 mg of the desipramine and I know it can take about that long for a medication to fully work. So, I’m wondering if my symptoms are completely the MAV, or if it could be a little bit the meds?? I’m not really dizzy, nor do I have vertigo, really I just have this heavy headed feeling, like I just want to sleep. My tinnitus kind of waxes and wanes, so that doesn’t really bother me that much. I just don’t know what’s going on. It’s better when I wear my contacts than my glasses. If I take my glasses off, I feel normal, everything is just really blurry. I don’t know what’s going on. Does anyone have these symptoms? Should I back off the meds a bit, maybe to 25 mg?
My doctor originally wanted to put me on ami (I don’t know how to spell it!) but I tried it years ago for an unrelated condition and I felt so groggy that I stopped after 2-3 days. I really felt seriously stoned on it. But, maybe I should have given it more of a chance since it seems to have helped so many people on this forum.
Anyway, this has been a long post, I thank anyone who read it!