I’ve just joined up. I had a diagnosis recently from a vestibular rehab physiotherapist in London: “evidence of a peripheral vestibular asymmetry…also possibly suffering from a migraine variant balance disorder”. Am seeking further treatment and have been given gaze stabilisation exercises, etc. to do.
I’ve had terrible health since early 2006. Feeling drained and dazed/confused/“spaced out” - as if my brain is full of fog or cotton wool - for 90% of the time. Barely able to work. Often unable to get out of bed. Some attacks of vertigo (often provoked by visual stimuli) too, although these seem to have faded away. Absolutely exhausted a lot of the time. Waking up most mornings with a headache/“thick head”.
My various doctors have tended to treat all of this as a mental health problem but I think they may be wrong (and about 10 different antidepressant meds have had no effect). Sleep apnoea has been tested for and ruled out three times.
A few months before I got ill in 2006 I had a very bad dose of the flu. I lost my voice for about a month and afterwards I was pretty much deaf in one ear for about 6 weeks. Is it possible that the infection caused some kind of damage in my ear which might have led to the problems I’ve been having since?