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Visual distortion. Moving surroundings.

Thanks all for joining this forum!

I’m having dizziness since 14 months now. Started out with a feeling of sinking and falling while sitting on my couch. After that i felt like i was walking on the moon. My surroundings were so bright with light and sound sensitivity. When I walked my legs felt very heavy and they we’re sinking in the ground. I woke up with a buzzing body and headaches behind my eyebrows every day for 2 or 3 months. Could not stand patterns(looked like 3d coming out towards my face) I can name 100 symptoms more I think when i go on.

After a few months it was unbearable and I took a low dose celexa which improved my symptoms to a certain point and took me out the phase of desperation. I’m now past the worst and working and exercizing again and i’m going to get a diagnosis, as I dont know what vestibular disorder I have.

What i’m left with is;

  • Feeling of sinking in the floor, feeling of stepping of an edge into empty space, floor slipping away

  • Surroundings seems like its moving. It is swaying, moving slightly in and out(zoom) or is shifting(like objects shift to the left or right or up and down). Also seems pulsating, but not related to pulse? Surroundings seem disorted.

  • I call it “a party in my head” . I have headaches on different kind of places in my head. About once a month a really bad headache. Mostly after a few busy days when I’m having a free day.

My fathers side of the family has a history of headaches. They never had a diagnosis, but they were all prescribed a combination of paracetamol and 2mg valium when they had headaches. Thats why I think I might have VM. When I was a child, the first thing that happened when I had vacation is that I was puking. Is this migraine related?

Can anyone relate with this kind of vision problems! I had some days where my vision cleared up for some reason and I felt nearly back to normal.

Thanks in advance for your reponse and knowledge.

Hello and welcome.

The symptoms you are describing are certainly familiar to all of us. They do sound like VM, though there could be other things that describe them. I would very much encourage you to visit a neurologist or neurotologist. Make sure the provider you choose (if you get a choice) has an understanding of VM.

Please read our wikis and do searches on all your symptoms, questions, issues, fears. This site is very extensive and you’ll find answers, hope, sympathy and strategies.

And yes, each and every symptom you described is common here. They are common to me. The three bullets you described are all going with me right at this moment. But Botox is tomorrow, so hope of getting back to closer to normal is in sight. Please take a good look around here. Arm yourself with education and then start the health system roller coaster. No treatment work for everyone and it takes a long time to find your groove. But most of us do find a solution that gets us to a place where we can thrive again.

Good luck and welcome.

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