I’m new here so I apologize if I’m not doing this right. Also, I’m on my cell phone so I apologize if the formatting is off. About 8 weeks ago I had two mild episodes of positional vertigo, I thought maybe it was just BPPV because I did feel a little swimmy and off for about two weeks. The issue is I was left with the ‘bouncing vision’ or oscillopsia that has not resolved and only gotten worse. It started as just some things in my horizon bouncing up and down.
I’ve had all the vestibular testing and my inner ears are normal so the neurologist is saying I have vestibular migraines because it has to be a central issue. I’ve looked through the posts here but I’m not really been able to find someone like me where it’s just all visual symptoms. I know this isn’t a place to diagnose but I will list my symptoms here:
Vision bounces up and down when I walk.
Vision bounces side to side when I move my head.
When I move my head to the right even slightly things shift to the left a little bit, and vice versa.
Recently my vision has started to vibrate a lot when I’m walking, so it’s vibrating and bouncing up and down. And also noticed it vibrating when I’m sitting down.
Fast moving things like cars and ceiling fans look like they’re moving a lot faster than I know they are. This also happens when I’m watching TV, like if someone runs on the TV it looks like they’re moving at hyper speed.
I work on a computer and when I type the words on the screen vibrate slightly.
My vision was sometimes blur close up, like if I’m talking to someone their face looks blurry.
There’s sometimes a shimmer to everything around me.
I’m nearsighted and I haven’t been to my eye doctor yet but it seems like my far vision has gotten a lot worse in the past couple weeks.
So basically every time I move my head things are moving slightly or looking distorted. It has made doing day-to-day things and just living pretty impossible at this point. My neurologist doesn’t want me to take any medication and just wants me to take supplements for right now. My concern is that these visual symptoms are never going to go away, and I can’t really live my life like this. I’m concerned this is just some sort of neurological condition and not vestibular migraines since I only have this visual stuff.
Does anyone else have the visual symptoms only and has it improved for you over time? I see no future for myself right now and I’m very scared. I think I could handle some of this stuff if the bouncing and vibrating vision when I walked went away.