Continuing the discussion from NEW LED TV and increase in symptoms:
Well, is it? Really in the long run. Surely such an experience is strongly indicative that there are issues that do need to be addressed. Fair enough such a huge assault on already heightened senses is the other extreme and personally I don’t think, having had MAV, I would ever expect my brain to tolerate such a megatron or even one half the size but I still have to ask the question. Is accommodating it or ignoring it going to make it go away? I think not. Surely it must be far better to embark on a preventative whilst symptoms are still episodic and the vestibular system is still able to reset itself than wait and end up trying to medicate a system that is already hyper sensitised 24/7.
The necessity for Trigger Avoidance was about the only piece of advice I ever received from the medical profession. Everything else I had to work out for myself. But Trigger Avoidance was thrown at me consistently by my own GP, the VRT body and the migraine specialist neurologist. I avoided supermarkets for over two years and 4.5 years on I still haven’t been inside a restaurant. Having been chronic since December 2015 and having had extreme light sensitivity I had a lot of triggers to avoid but gradually I’ve reintroduced most of them pretty successfully. I’ve improved dramatically over the last two years and even more so this year. I can use a Ipad all day if I want, a PC but less and TV’s not a problem. I can do Step Ups again, stand on a step to extend my reach even sit out in summer sunshine for an hour. But there are still Triggers which will get me. I still cannot pick the runner beans in the garden, peg out a whole line of washing or kneel down to do weeding.
Yesterday we went into town. Not big town, or the county town just small county town. Despite being Saturday it was very quiet, no crowds at all. Bright and sunny. We shopped briefly in Argos then went into quite a big department store. Very few people about. Before we drove home we popped into a bakers and queued a while. All no trouble at all. I felt fine. Totally comfortable in the shops. A very slight something outside, just momentary and quickly forgotten. Came home, cooked light lunch then did one of our accustomed walks with the dog, back home, cooked a meal during the eating of which a hot flush brought on some dizziness as tends to happen these days and then felt bit off all evening. As a result of that outing today I’m about 85%. My head is tight, My eyes feel like they are long since divorced and going their separate ways and my balance is just off.
So too many triggers (a bit of shopping) has wound it up, again. I know perhaps I should be out and about exposing myself to these triggers much more often perhaps but it just isn’t going to happen. Trigger Avoidance can only go on for so long. At this moment I feel as if I could do a very passable interpretation of that famous painting, ‘The Scream’. I’m not scared, I’m not depressed, just frustrated. Helen