Do others wake up with a headache every day? Feel dizzy and feel like your body and head are swaying each day?
1 Like
Yes, all day every day. It can be quite common with VM.
1 Like
No headache whatsoever most of my ill days. Nor dizziness (largely because of Amitriptyline). Just imbalance and swaying (and tinnitus)
But symptoms come and go, ebb and flow, new ones appear and others disappear.
Eventually it almost all resolved (see my diary)
1 Like
Yes, until I found the right medications. I also got corrective lenses and went through both vestibular and vision therapy. And I stopped drinking alcohol and caffeine. I still have headache/dizzy days but my symptoms are usually mild enough that I can take a pill and get on with my life. Big improvement over where I started.
We’re all different so unfortunately there’s no straight path to get your life back – it can be a frustrating trial-and-error journey. Don’t give up!
2 Likes
Did you feel like you was swaying, dizzy each day? Glad you are better, I can only hope for similar soon. I’m on 30mg Amitriptyline but doesn’t seem to be touching the headaches.
1 Like
I was dizzy and nauseous all the time in between massive vertigo attacks that lasted 3 - 10 hours each, about five days a week. I was very, very ill at my worst. Once the vertigo was under control with meds, the dizziness gradually got better.
1 Like
Which medication did you feel worked best?
1 Like
I rarely have headaches. My dizzy/vertigo days are always pain free, but the dizziness and vertigo are so overwhelming that I’m forced to bed in a dark room, so the results are similar, it’s that the discomfort is different.
1 Like
Topiramate daily, and clonazepam as a rescue med have been the most effective for me, although I take other drugs as well. Both meds have side effects. However my situation is on the extreme end of things so I either put up with unpleasant side effects or move into assisted living. I’m not typical by any means.
1 Like
Terrible day today, head feels like it’s moving all over the place, it’s hard to work. Not got much of a headache either today which is unusual but the dizziness is terrible. I’ve also noticed sometimes, when I get in bed I have a raising heartbeat but I have no anxiety etc. Very frustrating illness.
2 Likes
It is. Disruption to work is the pits. Consider starting a diary when you feel up to it in Personal Diaries 
1 Like
A post was split to a new topic: Could it really be migraine?