So I spoke to a neurologist around two weeks ago who has given a probable diagnosis of VM. I was sooooo nervous for the call because I thought he was going to tell me he didn’t know what was wrong. But it was actually very reassuring He’s given me a treatment plan and was honest that it could take a while, but reassured me that I would see some normality again. He was so lovely and really sounded like he wanted to help me.
My symptoms are worse than they’ve been before. I’m spinning 24/7 and have been bed bound for a few days. But, I feel much more calm having an idea and reassurance of what’s wrong.
I hadn’t experienced any visual symptoms until very recently and honestly they’ve really scared me. In the last few days, I’ve experienced flashing lights, shaky vision and ‘blobs’ in my eyes (not sure how to describe it- kind of like when you look at a light or the sun for too long and then you get floating black/yellow dots in your vision?).
I have finally plucked up the courage to start amitriptyline! Wish that I didn’t read into it so much to start with but hey ho. I’ve only taken 5mg for 3 nights (I know this is such a baby dose but I had to cut the pill in half for my own reassurance). I’m going to go up to 10mg next week.
I wanted to ask if anyone else had experienced their symptoms getting worse and worse before better and if that is typical of VM? 6 months ago at the start of all this, I was experiencing daily episodes of vertigo and dizziness, but I would always have some point of relief. As the months have gone on and especially in the last month, my symptoms seem to have turned chronic, I have NO relief and I’ve got more and more symptoms as time has gone on. I wondered if anyone else experienced this? My neurologist said this is a big factor in what makes him think it is VM, because migraine changes so much. I have a strong family history of migraine, my mum has been on migraine preventative meds for YEARS and was really really poorly for over a year with migraine. She was never diagnosed with MAV but her symptoms were quite similar to this.
I really really appreciate this space and all of you lovely people! <3