Let me introduce myself, my name is Nicky and I’m a 26 y/o female living in Australia. Ever since I was a child I’ve had relatively severe motion sickness (swings, cars, boats etc.), as well as the occasional ear infection.
In 2010, I fell ill for a week. I felt as though I had this uncomfortable and extremely frustrating shaking feeling in my head, like someone / something was shaking my brain. During this period I was unable to focus / concentrate and found that the shaking became too intense to deal with when I tried to look at my computer, phone, books or in mirrors…so I avoided doing these things for the full week. I went to the doctor and got told that I had a sinus infection. I had had a cold during the previous week, so I accepted this diagnosis.
Fast forward to 2017 and I’ve been having these same symptoms, lasting 1-2 weeks a few times a year and missing a decent amount of work. During this time I started to notice that the feelings I was getting didn’t seem to be associated with any other sinus symptoms whatsoever. My aunt had also passed away from brain cancer, and for this reason my mum decided to take me to hospital for an MRI, once I was there the doctor confirmed that he thought I had migraines and that “aspirin would do the trick”. However, I already knew from experience that no painkillers had any impact whatsoever on the migraines that I was getting as I wasn’t experiencing any pain and I also knew that my symptoms were dissimilar to everything I read online re: migraines. I still accepted because I knew that there could be atypical migraines, but had no idea where to find out any information about them and I couldn’t find anything that fit my symptoms online (I wasn’t good at describing them).
In 2018 everything began to change. My episodes were suddenly preceded by an aura! The symptoms were as follows -
- Blurred vision
- Heavy eyes
- Mild tunnel vision
- Intense dizziness
After the aura finished the nausea and dizziness would continue, and the shaking feeling in my head would begin. These new and more intense episodes are lasting anywhere from 1 week to 2 months…and counting, as I’m currently still battling with one. I’m now been put on indefinite leave at work.
A few months ago I began seeing a neurologist who prescribed me propranolol (although I can’t take a high dose due to having low BP), sertraline (for mild situation depression) & ativan (such a life saver for anxiety / panic attacks but I’m careful not to use this too often). I know that I do not have the traditional vertigo (yet) associated with Vestibular Migraines but after finally typing in a keyword on Google that brought me to a vestibular migraine forum I felt as though my symptoms were more aligned with this condition then anything else I’d ever come across. My neurologist agreed and he sent me to a vestibular physio who confirmed that this was definitely the case.
My anxiety is through the roof because I’ve always tried to convince myself that this is something I’m just going to have to deal with for a couple of weeks a couple times a year, but now I feel like my quality of life could plummet. I joined this forum to try and find some relief but I’m finding myself getting extremely emotional reading everyone’s posts (have decided to stop reading for now). My heart goes out to all the people who are suffering daily. The last two months of my life have been horrific and reading some of the things that others have gone through brings me to tears.
This has been a long post, I know, I’m sorry haha. To finish things off I have a question -
Does anyone else have similar symptoms to me, or even different symptoms, that have NOT progressed into something chronic? I know that this forum is for chronic suffers but I don’t know if there is a forum for people who don’t suffer chronically…in fact, from what I’ve been reading on the internet it seems like everyone who gets vestibular migraines has them chronically, which is really scary thing to read but I’m not sure if it is accurate (hopefully not).
Thank you for reading.