I’m Matt aged 43 and I have been suffering with constant vestibular migraines since July 2023. They initially started in 2018 when I had a routine dental treatment that resulted in a root canal being given without anaesthesia. The dentist advised that he wanted to test my pain levels. Since that day I believe the trauma to my mouth has given me this debilitating condition that has ruled my life.
Since July it has come back with a vengeance and my head feels like it’s in a vice, constant dizziness, headaches and the feeling of being drunk. I have become teetotal because drinking any alcohol just makes it worse.
I have tried all the medication recommended and nothing has worked.
I have numerous specialists who I have tried a variety of treatments but nothing works,
I am unable to take time off from work and am due to start a new job on Tuesday.
Welcome to our forum where everyone is really friendly and eager to help, @Mattw8088! You can find some helpful information in the Welcome Topic here: Welcome to mvertigo and please take a look at our posting guidelines here: Posting Guidelines. Feel free to ask any questions you may have about living with constant vestibular migraines.
I’m quite new to this forum, but have already found lots of helpful advice within the categories (namely, medications, coping & non-pharmacological).
I noticed you said you’d tried all the medications and see lots of specialists. Have you come across the HYH/VM diet yet? MSG was and probs still is a big one for me! Supplements also have research supporting their use (magnesium glycinate, B2, D3 if low & Coq10 are the most researched).
Sorry if you’ve already come across these - thought I would mention on the chance that you hadn’t!
I’ve been having a rough two months, and am considering trying feverfew or ginkgo biloba - the former has more research I think, but at this point I’m happy to try anything! Dr Shin Beh’s book is great for going through all the options (both pharma and not). * edited to add that if anyone tries Gingko, Shin Beh says to supplement with vitamin B6!
You’ve said you tried all the medications but there are quite alot out there! Have you tried the new cgrp treatments that have been arpund for just a few years now? Also, have you tried botox? I fully believe that there is a treatment out there for everyone, whether that’s vitamins, botox, cgrp injections, or other medication.