Hi there,
I am totally hopeless. Is any of you suffering dizziness, head pressure and pulsing, tinnitus… without headache?
Which med helped you?
Thanks
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Hi Poppy. I’m new here, but also have dizziness and head pressure. The only thing that has helped me is low dose Prednisone. I have side effects of more dizziness and more ear pressure, but after taking for a week, I start feeling much better. The dizziness is gone for now and very low pressure in the ears. Hope that helps. My ENT calls it in for me.
Thanks Addy for your answer! Do you have headache? It is quite frustrating for me because Drs told me that my ear is perfect and that the problem is central. They gave me anti-epileptics and anti-convulsants that made my situation much worse. I achieved some stability with Flunarizin while main issue was locomotion. They tried new meds for that and it was a hell. Now I can’t barely leave my house and feel dizzy all the time. Only lying down helps. Taking Remeron and Olanzapine that make me feel very drowsy plus my general dizziness.
So glad your treatment worked!!!
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I don’t have headaches. I had vertigo for years. The past few months got much worse. I had 4 Epley maneuvers and the 4th one got rid of the vertigo. But then I was left with dizziness and ear fullness/pressure. I still feel tired all the time. I get out and do better, but then feel exhausted later. My ENT said my ears are fine. I saw an audiologist and have a slight hearing loss in my right ear, but I have always had that.
I wanted to sleep all the time to escape the dizziness. But the more I was lying down, the worse I seemed to feel. I had to get out and walk and go to a store, even if it made me feel awful. Sitting still for so long was making me crazy. I tried Meclizine for dizziness, but it didn’t help very well. Sitting in a recliner with my head up and supported always helps with the dizziness. I think lying down creates more pressure in the head and ears.
When I work on hobbies or decorate, I seem to do better. I have to get my mind off the dizziness and problems. Family really don’t understand because they don’t know what we are going through. There were days all I could do was stay in bed and not move.
Good luck to you and hope you find the right treatment for you. Take care of yourself!
You and me could be twins. Big big hugs!!!
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It helps to get this stuff out! I felt like I was going crazy. Nobody understood and the doctors look at you like you are nuts. I have a volunteer job with senior citizens. I’m leaving for that now. I do craft projects with the elderly. I’m having some ear fullness right now, but I always feel better when I’m out of the house and keeping busy. Motrin helps a little and I take 2 of those every day. Big hugs to you too!
Poppy, please take a look at this old poll, I think the results are pretty useful:
NB: I should probably run it again and include anti-CRGP meds as it predates their availability.
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I sometimes get headaches but most of the time it’s a feeling of pressure not pain. Vestibular migraine can quite often present as 24/7 dizziness without typical migraine headache. There are alot of different meds to try and everyone reacts differently. So what works for one person may not work for another. Flunarizine has been so far the only med that worked for me but I’m looking to add another med to it to hopefully get better results. Recovery can take a long time, months if not years.
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Thanks! I am still so new at the site.
Yep, it would be great to include cgro and gepants.
I feel exactly the same however my dizziness is not related to pain. It is there. I’ve just quit from 1 Bromazepam and I am feeling terrible. Reintroduced it and still feeling awful. I wish I could know what’s wrong with me
Will need to be a fresh poll. I’ll consider that soon 
Many people with VM do not experience painful headaches. I often feel head pressure but seldom feel intense pain like most people with typical migraine do.
Having dealt with VM for many years, it’s apparent to me that finding the right treatment is a trial and error situation that sometimes takes a long time to get right. It might be a single med but you have to experiment with the dosage. Or it could be a combination of several meds (I currently take two preventative meds plus two rescue drugs). It often involves dietary and lifestyle changes (I’ve given up alcohol and caffeine, keep a regular schedule, etc.) Physical therapy might help or maybe not (it helped me but only after I was stable).
I think the key is to find a medical team you can work with, be willing to follow their advice, and don’t give up. There are treatments out there for you – they may not be perfect but your life will be better! Keep going!
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Just to add another useful topic:
I’m going to close this Topic, because of the numerous discussions and resources elsewhere discussing the same thing.