Here’s a bit of background in me. I’m so happy to find you!!! I have several diagnosis including MAV and binocular vision dysfunction both of which I received after suffering a “mild” concussion but believe I may have inner ear dysfunction and would like to be confident that I know what is really going on with me. Without giving you my entire saga(which I can do but am on my phone), what sort of Dr am I looking for to fully evaluate my vestibular system and/or treat my MAV??
I had bouts of unbalance/dizziness for a year or two preceding the migraine. The ent I saw couldn’t diagnose anything until two years in and after the concussion I said I had been dizzy for a month. I did have a VNG with mild abnormalities. He diagnosed me with MAV and offered Effexor which I declined. My neurologist had me try propranolol which didn’t work and recently gave me no new options and said to come back in 4 months!
My eye dr who does my vision therapy and is treating my BVD with prism lenses has referred me to a dr in Louisiana because he thinks I may have semi superior canal dishenence. I’d like to perhaps find someone local to see if they find anything with my ears.
I receive regular acupuncture and cupping which has helped my neck and shoulder tightness a lot!
I’ve also been on lexapro (an SSRI) and lamictal for over a decade. One thought is to switch my SSRI to Effexor.
Maybe I’m getting ahead of myself.
BOTTOM LINE: I’d love advice on who the great Dr are out there. I know of Dr Hain and feel conflicted that he’ll only do a consult but no testing and Dr Gianoli in Louisiana.