New and looking for my people!

So I’m 2.5 years into symptoms of VA. I’ve had all the scans and the tests. I’m currently on canderstarten which has reduced my symptoms but not got rid of them. I’m currently trying to get a merina coil as my migraines are definitely worse when hormonal.
It feels like it’s been a long tiring road to this point. I have an almost 4 year old and I feel I’m letting him down when we can’t do things due to my symptoms.
I’m very glad to find this group? Webpage? Whatever the best way to describe it is as I’ve felt very alone.
Saying to people you’re dizzy does not describe the overwhelming fear and panic it can cause, the tiredness, the aches and pains, the brain fog and the feeelings of utter hopelessness that come with it all.
Hoping to meet some people who understand what I’m going through and can commiserate with me.
Hoping that doesn’t sound daft!
Thanks if you made it this far

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Welcome to the forum, @Bambam! :tada: We are thrilled to have you here, and you will find that everyone is incredibly friendly and eager to help. If you haven’t already, we urge you to read the Welcome Topic at and familiarize yourself with the posting guidelines at Feel free to explore the wealth of information and support available here. We look forward to connecting with you and supporting you on your journey!

Welcome Amber!

So sorry you are suffering and we know aaalll about it sadly.

Hope you find the site useful and wish you the best of luck with your recovery journey.

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Hi Amber!

Welcome :blush:

I have joined recently too, and am also so glad to have found this forum. It really is a whole new level speaking to people who understand exactly what you’re going through. From my experience, people who have never experienced dizziness/vertigo (from any cause), really don’t understand what it feels like and how awful it can be.

The emotional impact which VM has is also a big one, which (I hope) you’ll find comforting to hear as you’re not alone at all.

I’d be interested to hear how you get on with the mirena coil - it’s one option which my neuro has suggested for me, once I’ve settled with my meds for a little while.

p.s you’re not daft at all, very brave for reaching out during a tough time and wanting to connect!

Thanks for your response!
I’ve got a call back booked next week with family planning to hopefully book me in for the coil as my doctors can’t do it so I think I’ve got a few weeks before I get that. But will definitely keep you updated.

Hi Amber. Welcome to the club you never wanted to join. Most of us here have been through a lengthy trial-and-error process trying to find a way to manage this miserable condition. But in the end most of us do get there eventually – maybe not all the way but good enough to live a relatively normal life. Please don’t hesitate to pop in here with questions and observations. I’ve found the folks on this forum to be both knowledgeable and compassionate. You’re not alone.

Thanks @sfnative - as much as it’s horrible other people suffer too - I am grateful there is somewhere to talk and read about others experiences!