Hi.
My name is Tracy and have been experiencing balance, dizziness and fatigue for many years.
Ive not been officially diagnosed with vestibular migraine but my ent consultant suggested this before referring to neurology.
Hoping to find out more on what i can do as currently my experience with neuro hasn’t been the best.
Ive got victory over vestibular migraine by dr shin and found this helpful.
Just wanted to be around others who understand how hard this condition is.
Thanks Tracy.
Welcome to the forum, @Legoqueen! 
We’re so glad to have you here! Everyone is really friendly and eager to help, so you’re in great company.
If you haven’t already, I encourage you to check out the Welcome Topic here: Welcome to mvertigo! and the posting guidelines here: Please read this before posting.
You’re not alone in your journey, and there are many members who understand what you’re going through. Feel free to share your experiences and ask any questions you may have. We’re all here to support each other!
Welcome Tracy! Lego Queens in particular are welcome here 
Hope you find site the useful and it helps you to get stuff under control!
Welcome Tracy, I apologize for not responding sooner, I somehow overlooked your post. I look forward to an update after your visit with your doctor.
Thought i would add an update but not sure if this is the best place to do it.
Currently in my longest episode of VM. Saw neurologist again this month who has agreed to put me forward for botox injections to see if this helps. Upped my amitriptaline as im struggling to fall asleep at night.
Ive been getting shaking in my hands and he thinks its anxiety driven so upped my SSRI. Feeling quite woozy which i think is normal as its 1st day of increase.
I am definitely seeing an improvement with the internal dizziness but i think this has increased again due to upping meds, so hoping this is temporary.
Thanks for this forum. I felt so alone with this.
Tracy.
Amytriptyline can cause tremors and shakiness, its the reason I stopped using it. Doctors will often patient blame, its anxiety or in my case he tried suggesting I was mainlining thyroid medications, but within a day or so of stopping Amytriptyline I was ok again.
Its always worth reading the patient information leaflet. Nortriptyline had the same effect. I’m not discounting anxiety but there are other causes of shakiness.
Amitriptyline gave me “restless leg” occasionally but I persevered with it.
It does worry me when doctors don’t have the knowledge of basic side effects of popular medications.
My friend took Venlafaxine and ended up with constipation. What did her GP do? Send her for an Endoscopy!! She only needed to stop/titrate down the venlafaxine! Doh!!! And we wonder why the NHS costs so much!
Thank you so much for this. I started having the shakes 1.5 months following increase to 50mg. Been on 75mg for 1.5 weeks and I havent had the shakes for a few days now so hoping that it was a side effect but i did notice it with anxiety too so possibly a combination?
Yeah that is very worrying. The shakes have now gone for the last few days so fingers crossed 
The first drug for VM I got given was Propranolol. Now I’m pretty good at my drugs knowledge. I’ve had previous drug induced anaphylaxis before so I am very careful. Propranolol is used off label to reduce anxiety and hyperthyroid symptoms, as well as migraine.
But its contra indicated for those with hypothyroid, which I have and asthma, which I also have. I queried it at the time but got airily that " it’ll be fine". It wasnt fine and caused an asthma flare.
I’ve found speaking to a qualfied pharmacist much more useful when asking about drug side effects and interactions.
I had childhood asthma and so didn’t want to take propanolol. My GP didn’t want to prescribe it to me but two neurologists both said “it’ll be fine” and pooh-poohed the asthma risk. I still said I didn’t want to take it and they respected my wishes but it does frustrate me how blasé doctors can be.
I understand them not remembering every side effect to every medication out there but if a patient sees them with a symptom that could be caused by a medication the first thing they should do is ask what meds the patient is on and Google it if need be, I wouldn’t hold it against them if they did. Better that than assume it’s something else causing the symptoms.
@Legoqueen hope you’re feeling better soon and those shakes stay away. Keep us updated.
Thanks for sharing. So pleased you stood your ground. I will definitely keep updating 
Another thing, i had my results from MRI brain scan which showed nothing linked to VM but they did find a incidental flair hyperintense nodule within the left parapharyngeal space and suggested MRI neck with contrast. I had that at weekend but im trying to make sense of what this means. Will have to ask my GP when i see him next.
This should be interpreted by a specialist, not your GP.
Yeah absolutely. That makes sense. Will have to see what neurologist says once reviewed by radiologist. I hope its nothing sinister. Thanks for replying so swiftly
That sounds like a role for an ENT, tbh.
Ask the neurologist (and GP) if they think a referral is warranted.
Thank you so much. I will 
Hope you’re feeling better now @Legoqueen?
I would also agree that (generally) pharmacists are much more aware of drug interactions and also medications more generally - half life, side effects, dosage etc.
I’ve asked one pharmacist that I trust a few of these questions in the past, one of the best pieces of advice I received was to consult the BNF (if needed at all) for UK friends!
Hi Lotte. I am noticing some improvements since my last post. Hand shakes are minimal (only come out when im anxious outside), head pain not as ferocious and dizziness is still there but can feel a difference.
No word from my neck mri so hoping it means its fine. No botox appointment as of yet.
However am cheesed off with neurologist, saw my clinic letter and he said my dizziness was stress/anxiety, which is a bunch of c#%p. Called it swimming in my head which is not how i described it. Said it wasn’t true vertigo, tinnitus or hearing loss. I have daily tinnitus for years, even have hearing aids by the nhs to help me hear certain pitches. I dont know how i can get this rectified…
That’s great!! I would suggest following up about the neck MRI - sometimes scans and results can get lost etc. and always best to double check than assume no news is good news. A family relative of mine didn’t hear about a head MRI, followed up 3 months later and they’d lost the photos/file!! He’s had to go in for a repeat scan. I’m sure that’s probably not the case with you, but I would be more cautious/proactive.
That’s absolutely ridiculous what your neurologist said! It’s so typical of medical professionals to jump to the anxiety route, and even if anxiety is present, it’s more likely being caused by the condition itself.
If you feel comfortable sharing, is your neurologist on the NHS or private? Others might have suggestions too, but it could be worth speaking to your GP or even calling the neurologist’s secretary to discuss the discrepancy in the letter.
I’ve had information that was inaccurate too and have reached out to the secretary in the past to fix it! Hope it’s sorted for you soon!